Gjerberg, E., Lillemoen, L., Forde, R., & Pedersen, R. End-of-life care communications and shared decision making in Norwegian nursing homes-experiences and perspectives of patients and relatives. (2015) [31] | Residents and families | Perceptions of SDM in end of life care | Norway | Interviews and focus groups | Readiness | Enabler Explored readiness for residents and families in SDM for end-of life care. Found that health care professionals should take responsibility for initiating conversations and involve families with consent. SDM should be individualised and iterative. Barrier Some residents and families expressed unpreparedness for SDM. Differences between residents in desire for SDM. Most relatives wanted to be involved in decisions but entrusted staff to make final decisions. |
Iden, K., Hjorleifsson, S., & Ruths, S. Treatment decisions on antidepressants in nursing homes: A qualitative study. (2011) [32] | Staff | Explores decision making about treatment with antidepressants | Norway | Interviews and focus groups | Evidence based information | Barrier Lack of EBP and resident/family involvement SDM in antidepressant prescription. |
Mann, E., Goff, S., Colon-Cartagena, W., Bellantonio, S., & Rothberg, M. Do-not-hospitalize orders for individuals with advanced dementia: Healthcare proxies perspectives. (2013) [33] | Families | Explores health care proxies understanding of do-not-hospitalize orders and why they may or may not initiate them | USA | Interviews | Evidence based information Readiness | Barrier No collaboration with families to improve capacity to make informed decisions that reflect individual values and wishes. |
Norheim, A., & Vinsnes, A. Factors that influence patient involvement in nursing homes: staff experiences. (2012) [34] | Staff | Explores staff experience of factors influencing patient involvement | Norway | Focus groups | PCC Education | Enabler Staff education in PCC. Staff stressed the importance of patient-centred attitudes for resident involvement in decision making. Barrier Time pressure was a key limiting factor to PCC. |