Gjerberg, E., Lillemoen, L., Forde, R., & Pedersen, R.

End-of-life care communications and shared decision making in Norwegian nursing homes-experiences and perspectives of patients and relatives. (2015) [31]

Residents and families

Perceptions of SDM in end of life care

Norway

Interviews and focus groups

Readiness

Enabler

Explored readiness for residents and families in SDM for end-of life care. Found that health care professionals should take responsibility for initiating conversations and involve families with consent. SDM should be individualised and iterative.

Barrier

Some residents and families expressed unpreparedness for SDM. Differences between residents in desire for SDM. Most relatives wanted to be involved in decisions but entrusted staff to make final decisions.

Iden, K., Hjorleifsson, S., & Ruths, S.

Treatment decisions on antidepressants in nursing homes: A qualitative study. (2011) [32]

Staff

Explores decision making about treatment with antidepressants

Norway

Interviews and focus groups

Evidence based information

Barrier

Lack of EBP and resident/family involvement SDM in antidepressant prescription.

Mann, E., Goff, S., Colon-Cartagena, W., Bellantonio, S., & Rothberg, M.

Do-not-hospitalize orders for individuals with advanced dementia: Healthcare proxies perspectives. (2013) [33]

Families

Explores health care proxies understanding of do-not-hospitalize orders and why they may or may not initiate them

USA

Interviews

Evidence based information

Readiness

Barrier

No collaboration with families to improve capacity to make informed decisions that reflect individual values and wishes.

Norheim, A., & Vinsnes, A.

Factors that influence patient involvement in nursing homes: staff experiences. (2012) [34]

Staff

Explores staff experience of factors influencing patient involvement

Norway

Focus groups

PCC

Education

Enabler

Staff education in PCC. Staff stressed the importance of patient-centred attitudes for resident involvement in decision making.

Barrier

Time pressure was a key limiting factor to PCC.