Field | Item number | Assessment item | Field | Item number | Assessment item | |||||
Medication | (1) | I never take more (or less) than the prescribed dose of immunosuppressive drugs or any other medicine | Prevention and management of disease and symptoms | (27) | I regularly weigh myself and take my blood pressure and body temperature | |||||
(2) | I never deviate from the prescribed time by at least 2 hours when taking immunosuppressive drugs or any other medicine | *(28) | I am on the lookout for symptoms such as sudden weight gain, swelling, feelings of lethargy, fever, decrease in urine volume, bloody urine, changes in blood pressure, or discomfort around the transplanted kidney | |||||||
(3) | I never forget to take my medicine, be it an immunosuppressive drug or any other medicine | (29) | I consult my medical professionals if I experience symptoms such as sudden weight gain, swelling, feelings of lethargy, fever, decrease in urine volume, bloody urine, changes in blood pressure, or discomfort around the transplanted kidney | |||||||
*(5) | I always keep a stock of medicine on hand just in case | (30) | I avoid going to crowded or polluted places any more than necessary | |||||||
(7) | I have thought of a way to prevent forgetting to take my medicine or taking the wrong one (or I never forget to take it) | (31) | I make sure to wear a mask and disinfect my hands during the epidemic of infectious diseases and when I go to crowded places | |||||||
(8) | I make sure to ask my medical professionals if there is anything regarding my medicine that I am not sure about or have a trouble | (32) | I brush my teeth every day without fail | |||||||
(9) | If I forget to take my medicine or take the wrong one, I make adjustments within the limit prescribed by my doctor | (33) | I regularly go for dental check-ups | |||||||
(10) | I make sure to ask my medical professionals if I want to (or intend to) change the dosage or type of medicine or stop taking it | (34) | I regularly get examined to see if I have developed cancer or heart disease | |||||||
Exercise | (11) | I habitually do exercise that is suitable for me | (35) | I observe the volume or color of my urine myself at regular intervals | ||||||
(12) | I avoid exercise that would put pressure on the transplanted kidney | (36) | If my blood test results indicated a problem, I would make changes in my lifestyle accordingly to alleviate it | |||||||
(13) | I adjust the amount of exercise I do based on what I think is appropriate for my body | (37) | When I feel unwell, I get examined or consult with my medical doctors right away and do not put it off | |||||||
(14) | If I cannot continue exercising for some reason, even if it is unrelated to the transplantation, I would not ignore it and consult my medical professionals | (38) | I ask for clarification if there is something I do not understand regarding a treatment, examination, or my doctor’s guidance or advice | |||||||
*(15) | I do not force myself to exercise when I am not feeling quite right | (39) | I would consult my medical professionals if there was something I did not understand about the side effects of a medicine or post-transplantation complications | |||||||
(16) | I tell or consult my medical staff regarding the amount and type of exercise I do | Psychosocial adaptation | (40) | I am not being able to get the amount of sleep or rest that is adequate for me | ||||||
Hydration and Nutrition | (17) | Based on my medical staff’s prescription or advice, I consume an appropriate amount of fluids for the season | (41) | I am coping well (or can cope) with any changes that the transplant has caused in me personally or my life | ||||||
(18) | Based on my medical staff’s prescription or advice, I moderate my intake of salty foods | (42) | If I feel anxiety regarding the transplantation, I discuss it with others, including my doctor | |||||||
(19) | Based on my medical staff’s prescription or advice, I consume an appropriate amount of protein | (43) | If I am stressed and cannot resolve it on my own, I would discuss it with someone such as a family member, a friend, or my doctor | |||||||
(20) | When drinking alcohol, I set a rough limit and do not exceed it (or I do not drink alcohol) | (44) | If I was uneasy or unhappy as a result of the transplantation, I would discuss it with someone such as a family member, a friend, or my doctor | |||||||
(21) | When eating out or eating convenience store food, I pay attention to the nutrition labels | |||||||||
*(23) | I do not adjust my diet or alcohol intake in advance of medical examinations | |||||||||
(24) | I moderate my sodium intake or adjust my fluid intake when my urine volume decreases or I experience swelling | |||||||||
(25) | When I have eaten too much or eaten heavily seasoned food, I reexamine my diet so that it does not become a regular occurrence | |||||||||
(26) | I regularly tell my medical professionals or consult them about the type or amount of food I eat | |||||||||