| Field | Round 1 comments (90 comments) | Round 2 comments (40 comments) | Round 3 comments (15 comments) |
| Medication | (2): Depends on how much it deviates. (3): If it’s once in a blue moon, that can’t be helped (4): It is advised to have stock for two weeks for disaster situations. It would be better to include the phrase “for two weeks.” (4): Having too much “stock” left over isn’t a good thing either. It is necessary to distinguish between medicine you forgot to take and excess medicine. (7): How should someone answer if they never forget to take their medicine? (9): If someone makes adjustments in the prescribed time range, I don’t think that’s a problem | (2): Would “within 2 hours” be okay? (5): I don’t think there’s any need to specify “two weeks” (6): I’d rather they save it than throwing it out | (1)-(3): Is there no need to distinguish between immunosuppressants and other medicines? (1)-(3): Is there no need to limit it to immunosuppresants? (5): Not every region or hospital instructs people to keep “2 weeks worth” of stock (6): I don’t understand what this question is getting at (10): Respondents do not adjust their own immunosuppresant dosage, so I don’t understand the point of asking this |
| Exercise | (11), (13), (14), (15), (16): Is exercise that necessary? (11): That depends on the amount of exercise too (12): Since you shouldn’t put pressure on the transplanted kidney, it would be better to mention that explicitly (12): If it’s once in a blue moon, that can’t be helped. If it’s frequent, then it’s a big problem. (14): Does this include factors unrelated to the transplantation like shortness of breath or pain in the feet? (15): Is this item related to self-management? (16): I don’t think many people are consulting their medical professionals about this (16): Is the word “regularly” necessary here? | (13): Even if the respondent answers that they “can,” they might in fact be doing exercise that stresses the transplanted kidney. Should we consider this as a tool by which we can assess the discrepancy between their answer and the reality? (14): It would be better for each respondent to judge for themselves whether this is something they should consult their doctor about in transplantation outpatient care (15): Simple present is better than present progressive tense here | |
| Hydration and Nutrition | (17), (18), (19), (20), (21), (22): It would be better to have prompts that ask how the person deals with it if they engage in such-and-such behavior (17): Protecting a transplanted kidney requires more fluids than just enough to prevent dehydration (17): The standard for “enough” varies depending on the facility. Certain facilities also prioritize different things, like measurement at regular intervals or total volume (of urine). It might be best to use the phrase “as instructed,” as well. (18), (19): There are overlapping items regarding sodium (19): Requirements for adequate protein intake vary based on how long it has been since the transplantation. As such, it is better to avoid asking about it in the same prompt as sodium. (20): Drinking too much is to be cautioned against, but a small amount on occasion can’t be helped (21): Even restaurants and convenience stores have healthy items. It might be necessary to have a prompt that asks whether the person makes sure to know what is in the food they eat (22): Attention must also be paid to additives | (21): The word “paying attention” presents the person with another hurdle in self-management; “confirm” would be better | (23): Depends on if they answer honestly |
| Prevention and management of disease and symptoms | (28),(37): Each of these prompts is important, but it’s difficult to distinguish between them (28): Is it necessary to always confirm these? (29): Sometimes you can’t avoid this, like when commuting (30): People are supposed to have been instructed about preventing infection, so this question is probably not necessary (31),(32),(33): Depends on what time period is being asked about (35): It is important to observe, but worrying about it excessively is not good | (28): Wouldn’t asking respondents if they “always” do this result in lower scores? (37): As a health management strategy, I’m not too sure about asking your doctor immediately just because a symptom occurred once (35): Wouldn’t any respondent who see this prompt think “So I have to measure the color and volume of my urine every day?” | (27): “Regularly” is difficult to interpret. Something more specific like “every day” would be better. (28): Paying attention? Observant of? It is necessary to consider what would be the most appropriate expression |
| Psychosocial adaptation | (40): For this prompt, I think it would be easier to respond to a negative statement, like “I cannot get enough sleep or rest” (40): It would be better to include the phrase “adequate for that person” (44): It would be better not to limit the consultee to their medical professionals | (42), (43), (44): Should we encourage them to go as far as to “resolve” it or is it enough for them talk to someone about it? |