| Field | Item number | Round 1 survey item (first draft) | Round 2 survey item | Round 3 survey item |
| Medication | (1) | (With some medicine) I sometimes take a larger (or less) dose than prescribed | Except medicine permitted by my doctor, I never take more (or less) dose than prescribed | I never take more (or less) than the prescribed dose of immunosuppressive drugs or any other medicine |
| (2) | (With some medicine) I sometimes deviate from the prescribed time to take it | Except medicine permitted by my doctor, I never deviate from the prescribed time by at least 2 hours | I never deviate from the prescribed time by at least 2 hours when taking immunosuppressive drugs or any other medicine | |
| (3) | (With some medicine) I sometimes forget to take it | Except medicine permitted by my doctor, I never forget to take my medicine | I never forget to take my medicine, be it an immunosuppressive drug or any other medicine | |
| (4) | I sometimes run out of stock of the medicine | – | – | |
| (5) | – | I always keep the stock of the medicine for two weeks on hand just in case | (No revision) | |
| (6) | – | I have not kept medicine that I forgot to take as extras (stock) without my doctor’s permission | I have not kept medicine that I forgot to take as extras (stock), nor thrown it out, without my doctor’s permission | |
| (7) | I haven’t thought of a way to remember not to forget to take my medicine or take the wrong one | I have thought of a way to prevent forgetting to take my medicine or taking the wrong one (or I never forget to take it) | (No revision) | |
| (8) | Sometimes I do not ask for clarification even if there is something I do not understand or am confused about related to my medicine | I make sure to ask my medical professionals if there is anything regarding my medicine that I am not sure about or have a trouble | (No revision) | |
| (9) | I sometimes make my own adjustments when I forget to take my medicine or take the wrong one | If I forget to take my medicine or take the wrong one, I make adjustments within the limit prescribed by my doctor | (No revision) | |
| (10) | I do not tell my medical staff about changes in the dosage or type of medicine I am taking, or if I have stopped taking it | I make sure to ask my medical professionals if I want to (or intend to) change the dosage or type of medicine or stop taking it | (No revision) | |
| Exercise | (11) | I do not exercise continuously | I habitually do exercise that is suitable for me | (No revision) |
| (12) | I sometimes exercise but that puts stress on my body (especially my abdomen) | I avoid exercise that would put pressure on the transplanted kidney | (No revision) | |
| (13) | I have not thought about whether I have been able to adequately exercise | I adjust the amount of exercise I do based on what I think is appropriate for my body | (No revision) | |
| (14) | Even if I have a symptom that prevents me from exercising, I sometimes ignore it | Regardless of the transplant, if I cannot continue exercising for any reason, I would not ignore it and consult my medical professionals | If I cannot continue exercising for some reason, even if it is unrelated to the transplantation, I would not ignore it and consult my medical professionals | |
| (15) | I sometimes exercise even when I am not feeling quite right | I do not force myself to exercise when I am not feeling quite right | (No revision) | |
| (16) | I do not regularly tell my medical professionals or consult them about the amount or type of exercise I do | I tell or consult my medical staff regarding the amount and type of exercise I do | (No revision) | |
| Hydration and Nutrition | (17) | Sometimes I do not consume enough fluids | Based on my medical staff’s prescription or advice, I consume an appropriate amount of fluids for the season | (No revision) |
| (18) | I often have opportunities to eat heavily seasoned food | Based on my medical staff’s prescription or advice, I moderate my intake of salty foods | (No revision) | |
| (19) | Sometimes I consume too much sodium or protein | Based on my medical staff’s prescription or advice, I consume an appropriate amount of protein | (No revision) | |
| (20) | I often have opportunities to drink alcohol or sometimes drink too much | I avoid alcohol as much as possible, and make it a point not to drink too much even if I have opportunities to drink | When drinking alcohol, I set a rough limit and do not exceed it (or I do not drink alcohol) | |
| (21) | I often have opportunities to eat out or eat convenience store food | When eating out or eating convenience store food, I pay attention to the nutrition labels | (No revision) | |
| (22) | I often have opportunities to eat processed foods | I try to avoid consuming processed foods or foods with additives as much as possible | (No revision) | |
| (23) | I sometimes adjust my diet and alcohol intake in advance of medical examinations | I do not adjust my diet or alcohol intake in advance of medical examinations | I do not adjust my diet or alcohol intake in advance of medical examinations | |
| (24) | I do not take the initiative to moderate my sodium intake or adjust my fluid intake when my urine volume decreases or I experience swelling | I take the initiative to moderate my sodium intake or adjust my fluid intake when my urine volume decreases or I experience swelling | I moderate my sodium intake or adjust my fluid intake when my urine volume decreases or I experience swelling | |
| (25) | I do not reexamine my diet even when I have eaten too much or eaten heavily seasoned food | When I have eaten too much or eaten heavily seasoned food, I reexamine my diet so that it does not become a regular occurrence | When I have eaten too much or eaten heavily seasoned food, I reexamine my diet so that it does not become a regular occurrence | |
| (26) | I do not regularly tell my medical staff or consult them about the type or amount of food I eat | I regularly tell my medical professionals or consult them about the type or amount of food I eat | (No revision) | |
| Prevention and management of disease and symptoms | (27) | I have not made a habit of taking my blood pressure or body temperature | I regularly weigh myself and take my blood pressure and body temperature | (No revision) |
| (28) | I have not confirmed whether anything is amiss in the transplanted area | I am always paying attention to symptoms such as sudden weight gain, swelling, feelings of lethargy, fever, decrease in urine volume, bloody urine, changes in blood pressure, or discomfort around the transplanted kidney | I am attentive to symptoms such as sudden weight gain, swelling, feelings of lethargy, fever, decrease in urine volume, bloody urine, changes in blood pressure, or discomfort around the transplanted kidney | |
| (29) | I would not consult my medical staff if I experienced symptoms of organ rejection, such as onset of fever, decrease in urine, pain in the kidney transplant area, or high blood pressure | I immediately tell my doctor if I experience symptoms such as sudden weight gain, swelling, feelings of lethargy, fever, decrease in urine volume, bloody urine, changes in blood pressure, or discomfort around the transplanted kidney | I consult my medical professionals if I experience symptoms such as sudden weight gain, swelling, feelings of lethargy, fever, decrease in urine volume, bloody urine, changes in blood pressure, or discomfort around the transplanted kidney | |
| (30) | I often go to crowded or polluted places | I avoid going to crowded or polluted places any more than necessary | (No revision) | |
| (31) | I do not use a mask even during the epidemic of an infectious disease | I make sure to wear a mask and disinfect my hands during the epidemic of infectious diseases and when I go to crowded places | (No revision) | |
| (32) | I do not brush my teeth or sometimes forget to | I brush my teeth every day without fail | (No revision) | |
| (33) | I do not regularly go for dental check-ups | I regularly go for dental check-ups | (No revision) | |
| (34) | I do not regularly get examined for cancer, heart disease, diabetes, etc. | I regularly get examined for cancer and heart disease | I regularly get examined to see if I have developed cancer or heart disease | |
| (35) | I do not observe the volume or color of my urine | I observe the volume or color of my urine | I observe the volume or color of my urine myself at regular intervals | |
| (36) | I would not do anything even if my blood test results indicated a problem | If my blood test results indicated a problem, I would make changes in my lifestyle accordingly to alleviate it | (No revision) | |
| (37) | I would not get examined or consult with my medical professionals when I feel unwell | When I feel unwell, I get examined or consult with my medical doctors right away and do not put it off | (No revision) | |
| (38) | – | Sometimes I do not ask for clarification regarding a treatment, examination, or my medical staff’s guidance or advice | I ask for clarification if there is something I do not understand regarding a treatment, examination, or my doctor’s guidance or advice | |
| (39) | I would not consult my medical staff even if there was something I did not understand about the side effects of a medicine or post-transplantation complications | I would consult my medical professionals if there was something I did not understand about the side effects of a medicine or post-transplantation complications | (No revision) | |
| Psychosocial adaptation | (40) | I do not get enough sleep or rest | I am not being able to get the amount of sleep or rest that is adequate for me | (No revision) |
| (41) | I sometimes ruminate about problems related to the transplant | I am coping well with how the transplantation has affected and changed me and my life | I am coping well (or can cope) with any changes that the transplant has caused in me personally or my life | |
| (42) | I do not talk with family members or those close to me even if I feel anxiety about something related to the transplant | If I feel anxiety about something related to the transplant, I discuss it with others, including my doctor | If I feel anxiety regarding the transplantation, I discuss it with others, including my doctor | |
| (43) | When I am stressed, I do not try to resolve it on my own or discuss it with anyone | When I am stressed and cannot resolve it on my own, I discuss it with someone such as a family member, a friend, or my medical professionals | If I am stressed and cannot resolve it on my own, I would discuss it with someone such as a family member, a friend, or my doctor | |
| (44) | I would not tell my medical professionals even if I was uneasy or unhappy as a result of the transplant | If I was uneasy or unhappy as a result of the transplantation, I would discuss it with someone such as a family member, a friend, or my medical professionals, and solve it | If I was uneasy or unhappy as a result of the transplantation, I would discuss it with someone such as a family member, a friend, or my doctor |