|
| n | % | Mean | Median | SD |
| Age of children at survey (years) | 157 |
| 9.9 | 10.0 | 4.4 |
| 2 - 4 | 24 | 42.1 |
|
|
|
| 5 - 7 | 29 | 18.5 |
|
|
|
| 8 - 12 | 54 | 34.4 |
|
|
|
| 13 - 18 | 50 | 31.8 |
|
|
|
| Gender |
|
|
|
|
|
| Male | 88 | 56.1 |
|
|
|
| Female | 69 | 43.9 |
|
|
|
| Tumor pathology |
|
|
|
|
|
| Embryonal tumors | 46 | 29.3 |
|
|
|
| Germ cell tumors | 36 | 22.9 |
|
|
|
| Low-grade gliomas | 38 | 24.2 |
|
|
|
| High-grade gliomas | 23 | 14.6 |
|
|
|
| Other | 14 | 8.9 |
|
|
|
| Age at diagnosis (years) | 157 |
| 6.4 | 6.0 | 4.5 |
| Time from diagnosis (months) | 157 |
| 41.5 | 32.0 | 39.5 |
| Treatment status |
|
|
|
|
|
| On treatment | 62 | 39.5 |
|
|
|
| Off treatment | 95 | 60.5 |
|
|
|
| Current intellectual disability (perceived by parents) |
|
|
|
|
|
| Presence | 12 | 7.6 |
|
|
|
| Absence | 145 | 92.4 |
|
|
|
| Neurosurgery |
|
|
|
|
|
| Received | 143 | 91.1 |
|
|
|
| Never received | 14 | 8.9 |
|
|
|
| Radiotherapy |
|
|
|
|
|
| Received | 108 | 68.8 |
|
|
|
| Never received | 49 | 31.2 |
|
|
|
| Chemotherapy |
|
|
|
|
|
| Received | 118 | 75.2 |
|
|
|
| Never received | 39 | 24.8 |
|
|
|
| Stem cell transplantation |
|
|
|
|
|
| Received | 17 | 10.8 |
|
|
|
| Never received | 140 | 89.2 |
|
|
|
| Trait anxiety of childrena,b | 94 |
| 34.8 | 35.5 | 8.7 |
| Relationship to child |
|
|
|
|
|
| Mother | 144 | 91.7 |
|
|
|
| Father | 10 | 6.4 |
|
|
|
| Grandmother | 2 | 1.3 |
|
|
|
| Grandfather | 1 | 0.6 |
|
|
|
| Age of parents at survey (years)a | 156 |
| 39.9 | 40.0 | 6.3 |
| Academic achievement of parent |
|
|
|
|
|
| High school | 64 | 40.8 |
|
|
|
| College or university | 93 | 59.2 |
|
|
|
| Parent’s psychological distressa,c | 155 |
| 8.1 | 6.0 | 7.3 |