(N = 65)

n/mean ± SD

%/range

Children with SMID

(n = 34)

Current age

10.4 ± 5.03

3 - 22

Age of onset

0.65 ± 1.64

0 - 8.5

Gender

Boy

16

48%

Girl

17

52%

Diagnoses (multiple answers)

cerebral palsy

9

20.5%

epilepsia

7

15.9%

PVL (periventricular leukomalacia)

5

11.4%

chromosomal abnormality

5

11.4%

gene defect

3

6.8%

acute encephalipathy

3

6.8%

hypoxic ischemic encephalopathy

3

6.8%

influenza-associated encephalopathy

2

4.5%

cytomegalovirus infection

2

4.5%

pineoblastoma

1

2.3%

syringomyelia

1

2.3%

holoprosencephaly

1

2.3%

diffuse axonal injury

1

2.3%

hydrocephalus

1

2.3%

Type of treatment given (multiple answers)

one or more

22

64.7%

Suctioning

20

31.7%

Tubal feeding

16

25.4%

Respiratory management

10

15.9%

Inhalation

8

12.7%

Urethral catheterization

4

6.3%

Colon irrigation

3

4.8%

CV catheter management

1

1.6%

Tracheotomy management

1

1.6%

Nothing

12

35.3%

Family caregivers

(N = 54)

Age

41.5 ± 6.16

30 - 61

Gender