Total

Cases

Controls

Relatives

The researcher is trustworthy

Very important

405 (90.3)

207 (91.6)

137 (88.4)

61 (91.0)

Somewhat important

39 (8.7)

17 (7.5)

17 (11.0)

5 (7.5)

Not very important

2 (0.5)

0 (0)

1 (0.6)

1 (1.5)

Not at all important

2 (0.5)

2 (0.9)

0 (0)

0 (0)

The institution where the research is being conducted is trustworthy

Very important

409 (91.3)

205 (90.7)

142 (91.6)

62 (92.5)

Somewhat important

36 (8.0)

19 (8.4)

12 (7.7)

5 (7.5)

Not very important

1 (0.2)

0 (0)

1 (0.6)

0 (0)

Not at all important

2 (0.5)

2 (0.9)

0 (0)

0 (0)

I will receive a personal report about my individual genetic risks and/or benefits

Very important

239 (53.9)

133 (59.1)

69 (45.4)

37 (56.1)

Somewhat important

142 (32.1)

73 (32.4)

53 (34.9)

16 (24.2)

Not very important

48 (10.8)

15 (6.7)

25 (16.4)

8 (12.1)

Not at all important

14 (3.2)

4 (1.8)

5 (3.3)

5 (7.6)

Data and samples are stored securely

Very important

366 (82.3)

186 (82.7)

123 (79.9)

57 (86.4)

Somewhat important

66 (14.8)

33 (14.7)

27 (17.5)

6 (9.1)

Not very important

12 (2.7)

6 (2.7)

4 (2.6)

2 (3.0)

Not at all important

1 (0.2)

0 (0)

0 (0)

1 (1.5)