Category

Words or phrases

Pain (n = 109)

“Pain” (34), “ache” (10), “pain in the bones” (31), “stomach pain” (18), “headache” (8), “crying” (6), “screams” (2).

Stigma and limits (n = 34)

“Pain” (34), “ache” (10), “pain in the bones” (31), “stomach pain” (18), “headache” (8), “crying” (6), screams” (2).

Disease (n = 166)

“Sick” (41), “cold” (3), “characteristic morphology” (2), “hospital” (16), “incurable” (7), “yellow eyes” (5), “pallor” (4), “Feeling bad” (14), “dizziness” (2), “swelling fingers” (1), “crisis” (1), “no appetite” (1), “transfusion” (1), “Can not sleep” (1), “bad illness” (2), “drugs” (4), “fever” (14), “water” (1), “serious illness” (2), “thin” (3), “bloated belly” (5), “bousillé bone” (1), “hereditary disease” (1), “vomiting” (4), “sting” (7), “fatigue” (30).

Feelings (n = 58)

“Shame” (2), “disgust” (2), “anger” (8), “too afraid” (1), “not happy” (2), “fear of being rejected” (1), “hate” (2), “unhappy” (1), “fear of being hospitalized” (2), “upset” (1), “frustrated” (1), “sad” (13), “discouraged” (1), “Fear” (11), “parental suffering” (1).

Death (n = 16)

“Death” (11), “dead before 25” (1), “short life” (1), “early death” (1), “fear of death” (2).

Battle (n = 23)

“Stop being sad” (1), “want to be like others” (1), “difficult” (3), “be strong” (4), “cure” (8), “hope” ( 6).

Blood (n = 26)

“Blood” (7), “red blood cells” (1), “decrease in blood” (8), “anemia” (4), “abnormal blood” (2), “deformation of red blood cells” (4).

Misunderstanding (n = 2)

“Sorcery” (1), “does not understand anything” (1).