Author and year

Objectives

Study design

Characterization of the sample

Use of ICF (conceptual structure or classification system)

Jarvis et al., 2019 [18]

Evaluate the most common type of strategy reported by caregivers to support their children’s participation at home of after critical illness and identify themes in the compensatory strategies described.

Cross-sectional

children from PICU, 71% of whom had chronic health conditions

conceptual

McDougall, Bedell, and Wright, 2013 [19]

Evaluate the psychometric properties of a self-report version of the Child and Adolescent Scale of Participation (CASP) to further validate the parents’ report and to compare the reports by parents to parents and children on the latter’s activity and participation.

Cross-sectional

Children and adolescents 11 to 17 years of age with various conditions/disabilities

conceptual

Gandhi et al., 2014 [20]

Develop databases of items related to three quality-of-life instruments on pediatric health.

Qualitative, with methodology linking ICF to measurement instruments

Parents of children 8 to 16 years of age

conceptual

McDougall et al., 2014 [21]

Explore the functional components based on the ICF and contextual factors associated with the perception of quality of life (QV) for young people with chronic conditions from the perspective of young people and their parents.

Cross-sectional

Children and adolescents 11 to 17 years of age with various chronic conditions, and their parents

conceptual

Petersson et al., 2013 [22]

Compare the content dimensions of the HRQoL instruments for self-report by children, using the ICF-CJ structure.

Qualitative, with methodology linking ICF to measurement instruments

Instruments for evaluation of quality of life

classification system

Rast and Labruyere, 2020 [23]

Develop a detailed list of priority family-centered rehabilitation goals at the activity level in a pediatric population with a wide range of health conditions. Investigate the relationship between this list of priorities and the children’s health status, level of functional independence, and age.

Cross-sectional

Children admitted to a rehabilitation hospital

classification system

Fayed et al., 2014 [24]

Explore whether the results of activity and participation are included in clinical trials on chronic diseases of childhood and determine which characteristics of trials are associated with their use.

Cross-sectional

Registered clinical trials for children with chronic medical conditions

conceptual

Leonardi et al., 2012 [25]

Describe the functioning and incapacity of children in vegetative state (VS) and minimally conscious state (MCS) using ICF-CY

Cross-sectional

Children in vegetative state (VS) and in minimally conscious state (MCS)

Classification system