Author and year | Objectives | Study design | Characterization of the sample | Use of ICF (conceptual structure or classification system) |
Jarvis et al., 2019 [18] | Evaluate the most common type of strategy reported by caregivers to support their children’s participation at home of after critical illness and identify themes in the compensatory strategies described. | Cross-sectional | children from PICU, 71% of whom had chronic health conditions | conceptual |
McDougall, Bedell, and Wright, 2013 [19] | Evaluate the psychometric properties of a self-report version of the Child and Adolescent Scale of Participation (CASP) to further validate the parents’ report and to compare the reports by parents to parents and children on the latter’s activity and participation. | Cross-sectional | Children and adolescents 11 to 17 years of age with various conditions/disabilities | conceptual |
Gandhi et al., 2014 [20] | Develop databases of items related to three quality-of-life instruments on pediatric health. | Qualitative, with methodology linking ICF to measurement instruments | Parents of children 8 to 16 years of age | conceptual |
McDougall et al., 2014 [21] | Explore the functional components based on the ICF and contextual factors associated with the perception of quality of life (QV) for young people with chronic conditions from the perspective of young people and their parents. | Cross-sectional | Children and adolescents 11 to 17 years of age with various chronic conditions, and their parents | conceptual |
Petersson et al., 2013 [22] | Compare the content dimensions of the HRQoL instruments for self-report by children, using the ICF-CJ structure. | Qualitative, with methodology linking ICF to measurement instruments | Instruments for evaluation of quality of life | classification system |
Rast and Labruyere, 2020 [23] | Develop a detailed list of priority family-centered rehabilitation goals at the activity level in a pediatric population with a wide range of health conditions. Investigate the relationship between this list of priorities and the children’s health status, level of functional independence, and age. | Cross-sectional | Children admitted to a rehabilitation hospital | classification system |
Fayed et al., 2014 [24] | Explore whether the results of activity and participation are included in clinical trials on chronic diseases of childhood and determine which characteristics of trials are associated with their use. | Cross-sectional | Registered clinical trials for children with chronic medical conditions | conceptual |
Leonardi et al., 2012 [25] | Describe the functioning and incapacity of children in vegetative state (VS) and minimally conscious state (MCS) using ICF-CY | Cross-sectional | Children in vegetative state (VS) and in minimally conscious state (MCS) | Classification system |