Mother | Father | Sibling(s) | |
1. Role | ・ Providing care as the primary caregiver of the child with SMID ・ Coordinating the home care environment ・ Collecting information regarding the opportunities for child’s consultations, nursing, rehabilitation and education ・ Understanding and coordinating the state of the whole family ・ Making arrangements to reduce limits on siblings in their daily lives and future path (ensuring some time to refresh and spending time alone with the siblings) | ・ Sharing the role of mother in care and household duties ・ Coordination between family task and job ・ Being a mentor for mother ・ Coordinating family leisure, such as a trip ・ Involving himself with service representatives ・ Negotiating with administrative bodies ・ Negotiating at the court | ・ Helping with looking after the child with SMID ・ Trying to be an ordinary sibling ・ Trying not to cause the parents trouble ・ Supporting mother ・ Taking responsibility for future care of the child with SMID |
2. Expectations of other family members | ・ Wanting father to take charge of the child’s care as much as possible ・ Appreciating sibling(s) if they help care and household duties without much burden (Not wanting to limit future options of the sibling(s) or place a care burden on them) ・ Wanting sibling(s) to adequately participate in school or enrichment lessons, and hoping to their fulfilling daily lives | ・ Wanting mother to work with when providing care for the child ・ Wanting sibling(s) to become partners working with when providing care for the child ・ Wanting sibling(s) to have their own lives | ・ Wanting mother to have some time for rest ・ Wanting father to support the whole family ・ Wanting father to arrange the traffic line of daily life in the house (required for caring for the child with SMID) ・ Wanting grandparents to be nearby ・ Wanting grandparents to communicate with the child with SMID (touching or talking) ・ Wanting grandmother to do household duties (to reduce mother’s duties) ・ Wanting other sibling(s) to look after the child with SMID |