ID | Age of SMID child | Diagnoses | Family members | Social services in use/schools | |
1 | 14 | Acute encephalopathy | 2 adults and 3 siblings | ・ Preschool ・ Childcare support temporarily used for siblings ・ Special-needs school | |
2 | 7 | Periventricular leukomalacia, epilepsy (WEST syndrome) | 2 adults | ・ Chat meetings in rehabilitation room ・ Hospital visits: 10 days a month ・ Home care assistance: once a week | |
3 | 14 | Periventricular leukomalacia | 4 adults and 2 siblings | ・ Special-needs school: 5 days a week ・ OT and PT: 1 - 2 times a month ・ Rehabilitation center for disabled children → Kindergarten | |
4 | 7 | Hypoxic encephalopathy | 2 adults and 3 siblings | ・ Home-visit education: once a week ・ Home-visit nursing: once a week, home-visit bathing: twice a week, rehabilitation: once a week ・ Inspection of respirator and home-visits by a doctor: every fortnight ・ Respite care: once every 3 months (for 1 week) | |
5 | 10 | Syringomyelia (atypical) | 3 adults and 3 siblings | ・ Home-visit nursing/bathing, home visits by a doctor ・ Home-visit education: 3 times a week ・ Respite care: once every 3 months (6 nights and 7 days) ・ Home care assistance: (used up to 6 hours per time, 2 - 3 times a month) | |
6 | 16 | Influenza-associated encephalopathy | 5 adults and 2 siblings | ・ Rehabilitation (PT): once a month ・ School: Monday-Friday, After-school childcare: 2 days a week ・ Home care assistance, home-visit bathing, family support services ・ Respite care: occasional use on weekends | |
7 | 5 | New influenza-associated encephalopathy | 2 adults and a sibling | ・ Respite care: once every 3 months (for 6 days) ・ Home-visits by a doctor: once a month ・ Home care assistance: once a week, rehabilitation, home-visit nursing/bathing | |
8 | 7 | Cerebral palsy | 2 adults and a sibling | ・ Home-visits by a doctor: once a months, ST ・ Free school: 5 days a week ・ OT, PT: once a month | |
9 | 12 | Fukuyama-type congenital muscular dystrophy | 2 adults and a sibling | ・ Special-needs school: weekdays ・ Home care assistance: 3 times a week ・ Visiting a doctor: once every 3 months, rehabilitation: 3 times a month ・ Respite care at a medical welfare facility |