| 28) Miller (1997) | Phenomenological | 10 (3♂) patients with MS Sub-types Not given Mean age: not given Age range: 40 - 59 years Mean time with illness: not given. Range: 2 - 39 years Mean time until diagnosis: not given. | Sampling: purposive Eligibility: a) willing and able to relate their experience b) diagnosed for greater than one year, c) with a disability score which indicated normal functioning, d) no cognitive deficits Setting: Clinic for MS patients Study geographical location: United States of America | Data collection tool: semi-structured interview guide considering experience of the patient Study Aim: “patients need to be asked about their lived experience of MS so that we as health care professionals can address concerns and improve their quality of life” (page 296) Average interview time: not given Interview time range: not given Analysis: thematic analysis |
| 29) Mozo-Dutton et al. (2012) | IPA | 12(4♂) patients with MS Sub-types RR 3 SP 5 PP 1 B 1 Unknown 2 Mean age: 46 years Age range: 34 - 71 years Mean time with illness: 14 years Mean time until diagnosis: not given | Sampling: purposive Eligibility: a) diagnosis of MS, b) aged over 18 years, c) able to consent to take part Setting: Patient’s home or “where they felt most comfortable” Study geographical location: United Kingdom | Data collection tool: Semi structured interview guide questions focus on self pre and post illness as well as future view of self. Bio-psychosocial and practical implications of impact explored Study Aim: “search explicitly addressing the experience of self among people living with MS remains an important priority. This qualitative study aims to address this gap and build on previous literature, by conducting an in-depth exploration of personal perceptions of self and the perceived impact of MS on “ (page 1209-1210) Average interview time: not given. Interview time range: 40 - 75 mins Analysis: IPA |
| 30) Norton and Chelvanayagam (2010) | Internet Survey | 150 (36♂) patients with MS Sub-types RR 56 SP 47 PP 26 Don’t know 26 Mean age: not given. Median 50 years Age range: 19 - 73 years Mean time with illness: Mean time until diagnosis: | Sampling: purposive Eligibility: (a) member of MS society UK Setting: Patients home via a computer Study geographical location: United kingdom | Data collection tool: open questions Study Aim: “Many people wrote at length about the bowel problems that they experience. This survey aimed to explore the issue in more detail in order to describe the impact bowel dysfunction has on the lives of people with MS, and to identify interventions that MS Society members find helpful that may warrant further investigation.” (page 2) Average interview time: not applicable Interview time range: not applicable Analysis: content analysis not clear |
| 31) O’Connor et al. (2005) | Mixed methods | 62 (22♂) patients with MS Sub-types Not given Mean age: 46 years Age range: 19 - 65 Mean time with illness: 12 years. Range 1 - 43 years Mean time until diagnosis: not given. | Sampling: purposive Eligibility: a) diagnosis of MS, b) attending a hospital, c) aged between 18 - 65 years, Setting: Hospital Study geographical location: United Kingdom | Data collection tool: semi-structured interview to consider experiences of MS and employment Study Aim: “identify factors that impact on work retention in patients with MS.” (page 892) Average interview time: not given Interview time range: not given Analysis: not given |
| 32) Olsson et al. (2008) | Phenomenological | 10 (0♂) patients with MS Sub-types 10 SP Mean age: 49 years Age range: 43 - 59 years Mean time with illness: 18.5 years. Range 2 - 29 years Mean time until diagnosis: not given. | Sampling: purposive Eligibility: a) had a diagnosis of MS, b) attended a rehabilitation hospital for MS. Setting: rehabilitation centre Study geographical location: Sweden | Data collection tool: Telephone interview schedule Study Aim: Average interview time: not given Interview time range: 40 - 60 mins Analysis: Phenomenological hermeneutic interpretation |
| 33) Olsson et al. (2010) | Phenomenological | 15 (0♂) patients with MS Sub type SP 15 Mean age: not given. Median 54 years Age range: 35 - 70 years Mean time with illness: not given. Median 24 years. Range 7 - 34 years Mean time until diagnosis: not given | Sampling: purposive Eligibility: a) female, b) diagnosis of secondary progressive MS Setting: Patients home Study geographical location: Sweden | Data collection tool: Telephone interview schedule Study Aim: “describe meanings of feeling well for women with MS.” (page 2) Average interview time: not given Interview time range: 40 - 60 mins Analysis: Phenomenological hermeneutic interpretation |