| 23) Koch & Kelly (1999) | Action research | 8 (0♂) patients with MS Sub-types Not given Mean age: not given Age range: 38 -75 years Mean time with illness: not given Mean time until diagnosis: not given | Sampling: purposive Eligibility: a) a diagnosis of MS, b) incontinence Setting: not given Study geographical location: United Kingdom | Data collection tool: focus groups discussing aspects around the aims Study Aim: “identify strategies for successfully managing urinary incontinence and what is important for the women who live with it” (page 15) Average interview time: not given Interview time range: not given Analysis: not given |
| 24) Koch et al. (2001) | Action research | 4 (0♂) patients with MS Sub-types Not given Mean age: not given Age range: not given Mean time with illness: not given Mean time until diagnosis: not given | Sampling: purposive Eligibility: (a) a diagnosis of MS Setting: MS community centre Study geographical location: Australia | Data collection tool: focus group schedule. Consideration to question around experiences, perceptions and strategies associated with urinary incontinence. Study Aim: “address a noticeable absence in the research literature about MS related urinary incontinence by providing an understanding of how men and women perceived and articulate the implications of this problem” (page 16 - 17) Average interview time: 2 hours Interview time range: not given Analysis: not given |
| 25) Malcomson et al. (2008) | Focus groups | 13 (4♂) patients with MS Sub types 6 RR 6 SP 1 PP Mean age: 54 years Age range: 40 - 67 Mean time with illness: 17.2 years Mean time until diagnosis: not given. | Sampling: purposive Eligibility: a) diagnosis of MS, b) self-belief that they were coping with the illness Setting: not clear (likely MS community centre) Study geographical location: United kingdom | Data collection tool: focus groups Study Aim: “the primary aim of this study was to explore personal accounts and experiences of individuals with MS who felt able to cope with the disease in day-to-day life” (page 663) Average interview time: 90 mins Interview time range: not given Analysis: thematic analysis |
| 26) Lexell et al. (2009) | Grounded theory | 10 (4♂) patients with MS Sub types 8 SP 2 RR Mean age: 53 years Age range: 41 - 67 years Mean time with illness: 17 years Mean time until diagnosis: not given. | Sampling: purposive Eligibility: (a) ‘moderate’ limitations in occupational performance, (b) ability to take part in the interview, (3) no disease influencing occupational performance. Setting: Patients homes Study geographical location: Sweden | Data collection tool: semi-structure interview considering experiences and occupations currently engaged in and if change had occurred over time Study Aim: “gain an enhanced under-standing of how people with MS_ experience their engagement in occupations.” (page, 773) Average interview time: 82 mins Interview time range: 32 - 133 mins Analysis: constant comparison method |
| 27) McLaughlin and Zeeberg (1993) | Ethnography | Denmark 51 (20♂) patients with MS Sub-types Not given Mean age: 40.8 Age range: 22 - 58 years Mean time with illness: 11 years. Range 3 - 18 years. Mean time until diagnosis: not given USA 35 (17♂) patients with MS Sub-types Not given Mean age: 42.4 years Age range: 19 - 65 years Mean time with illness: not given Mean time until diagnosis: not given | Sampling: purposive Eligibility: (a) patients with MS Setting: Patient’s homes or workplace Study geographical location: Denmark | Data collection tool: semi-structured interview schedule and structured interview schedule (self-care behaviour for MS inventory) Study Aim: “compares the extent of self-care behaviours of groups with MS in Denmark and in the United States” (page, 318) Average interview time: Interview time range: 1 - 5 hours Analysis: quantitative content analysis |