| 17) Hainsworth (1994) | Structured interviews | 10 (1♂) patients with MS Sub-types Not given Mean age: 42.8 years Age range: 28 - 55 years Mean time with illness: 4 years Mean time until diagnosis: not given | Sampling: Convenience Eligibility: (a) a diagnosis of MS Setting: patients home Study geographical location: United States of America | Data collection tool: Burke Chronic Sorrow Interview Schedule. The questionnaire uses 16 question to determine the intensity, occurrence, when it can occur and what can influence it Study Aim: To examine the experiences of chronic sorrow in patients with MS Average interview time: not given. Interview time range: 60 - 90 minutes Analysis: content analysis |
| 18) Hunt et al. (2013) | Phenomenological approach | 5( 2♂) patients with MS Sub-types Not given Mean age: not given. Age range: 40 - 65 years Mean time with illness: not given. Range = 1 - 30 years Mean time until diagnosis: not given. | Sampling: purposive Eligibility: a) living with MS, b) engaged with visual art work Setting: Private room in physiotherapy clinic Study geographical location: United Kingdom | Data collection tool: semi-structured interview guide. Study Aim: “This qualitative study explored the meanings of leisure-based art- making for people living with multiple sclerosis” (page 2) Average interview time: 1 hour Interview time range: not given. Analysis: IPA |
| 19) Irvine et al. (2009) | Semi-structured focus group | 8 (1♂) patients with MS Sub-types Not given Mean age: 49 years Age range: 36 - 63 years Mean time with illness: 12.8 years Mean time until diagnosis: not given | Sampling: purposive Eligibility: a) 18 years and older, b) diagnosed with MS for at least 5 years, c) willing and able to participate in a focus group Setting: MS charity location Study geographical location: United Kingdom | Data collection tool: A semi structured interview guide. Focused on views about how MS affects individual’s day to day lives, the patient’s values and how they see themselves. Study Aim: “this study explored individuals’ subjective experiences of coping with the changes associated with MS and the adjustments required in relation to self and identity” (page 601) Average interview time: Interview time range: Analysis: IPA |
| 20) Lsaksson et al. (2007) | Mixed methods | 38 (12♂) patients with MS Sub-types RR 26 SP 9 PP 3 Mean age: 40.5 years Age range: 20 - 62 years Mean time with illness: 5 years Mean time until diagnosis: not given | Sampling: purposive Eligibility: (a) clinically defined or laboratory supported diagnosis of MS Setting: Patient’s homes or room at a hospital Study geographical location: Sweden | Data collection tool: semi-structured interview Burke Chronic sorrow inventory. Focused on the patients concerns of chronic sorrow. Study Aim: “The overall aim of this study was to explore the presence and meaning of chronic sorrow in 61 persons with MS” (page 316) Average interview time: not given Interview time range: not given Analysis: latent content analysis |
| 21) Isaksson and Ahlström (2008) * same sample― excluded for totals | Descriptive with semi-structured interviews | 38 (12♂) patients with MS Sub-types RR 26 SP 9 PP 3 Mean age: 40.5 years Age range: 20 - 62 years Mean time with illness: 5 years Mean time until diagnosis: not given | Sampling: purposive Eligibility: (a) clinically defined or laboratory supported diagnosis of MS Setting: Patient’s homes or room at a hospital Study geographical location: Sweden | Data collection tool: semi-structured interview Burke Chronic sorrow inventory. Focused on the patients concerns of chronic sorrow Study Aim: “the goals of this study were to describe the method patients with MS use to mange choric sorrow and to apply these management methods to the theoretical model of chronic sorrow” (page 181) Average interview time: Interview time range: Analysis: latent content analysis |
| 22) Kirkpatrick Pinson et al. (2009) | Semi-structured interviews | 10 (0♂) patients with MS Sub-types Not given Mean age: 56.4 years Age range: 46 - 68 years Mean time with illness: 17.4 years Mean time until diagnosis: not given | Sampling: purposive Eligibility: a) clinical diagnosis for at least 8 years, b) a diagnosis of progressive-relapsing, secondary progressive, or primary progressive type of multiple sclerosis, c) no major depression currently, d) self or physician assessment of successful coping. Setting: at participants home or convenient locations Study geographical location: United States of America | Data collection tool: semi structured interview tool. Arranged around the precursors to coping. Study Aim: “report findings on how the precursors described above are expressed in women who are coping effectively with MS.” (page 184) Average interview time: not given Interview time range: not given Analysis: thematic analysis |