Garcia- Schinzari et al. 2014 | Paradigmatic position: Post positivist/Pragmatist Methodology: Mixed methods trial
Aim: Understand how a narrative program aided coping with hospitalisation in children and adolescents with cancer
Eligibility Criteria: Any child or adolescent with a diagnosis of cancer | Participants: 20 (14 Female, 6 Male)
Cancer type: Any type coming to the unit
Sampling Technique: Convenience Sampling from October 2008-July 2009
Setting: University based clinic
Treatment details: treatment provided in university clinic by occupational therapists.
Country: Brazil | Length: 1 single session
Content: three phases 1: Story is told by a pair of occupational graduates (who receive 33 hours of training) using resources of a box made for the purpose, the children are then invited to explore materials in the box and retail their story according to their interest. The idea is playful activities involving exploring the content of a “story box” which allowed retelling the story of a child.
Assessor/Researcher/HCPs involved: a unblind researcher was involved.
Cost: Not identified.
Development rationale: sharing stories helps them understand and develop coping strategies to deal with cancer
Outcome measure assessment: AUWEI Scale (Assumpçào Júnior et al., 2000) Field diary assessment of behaviour, posture and non-verbal communication (facial expression and body expression) | Methods: pre-experimental trial
Outcome measure development/Pilot work: not identified
Duration of interview:
Analysis: consideration to emotional expression change using a test to consider pre post change. Content analysis used for the field diary |
Ando et al. (2018) | Paradigmatic position: Not considered (likely post-positivist) Methodology: Pre-experimental Feasibility study using mixed methods
Aim: Investigate the feasibility of a narrative approach for terminally ill patients at a home hospice
Eligibility Criteria: 1) terminally ill patient who used home hospice 2) were aged over 20 years old | Participants: 10 (8 male and 2 female) Cancer type: Lung (n = 2) Liver, Rectal, ATL, Cervix, Stomach (n = 2) Heart Failure, Pancreas.
Sampling Technique: Convince
Setting: hospice
Treatment details: 2 sessions of story telling
Country: Japan | Length: 2 sessions (lasting 60 mins each)
Content: Session 1 considered questions around living pre and post illness, difficulties and coping Session 2 considered questions around importance of in life and thoughts about life currently, changes following illness, and hope for future
Assessor/Researcher/HCPs involved: Primary physician
Cost:
Development rationale:
Outcome measure assessment: The Functional Assessment Chronic Illness Therapy-Spirtual Scale (Peterman et al., 2002) The Functional assessment of Cancer Therapy General (Cella et al., 1993) Life Satisfaction Scale (Diener et al., 1985) | Methods: Outcome measures and interviews
Outcome measure development/Pilot work: Validity consideration to outcome measures no development of interview given
Duration of interview: not given
Analysis: Wilcoxon paired sign rank test |