| Evans et al. (2008) | Paradigmatic position: Not clear likely interpretivist Methodology: Not identified Aim: identify the meaning of the group
Eligibility Criteria: 1) Any type of cancer was included with any time since diagnosis, point of treatment, ethnicity or gender 2) individuals were under the care of an physician and spoke English 3) willing to share information with a group | Participants: 10 completed (9 female and 1 male) pre test (7 completed post test) Cancer type: any type
Sampling Technique: Convenience
Setting: Oncology clinic at medical centre
Treatment details: story telling intervention across 12 sessions
Country: USA | Length: 12 × 1.5 hour sessions
Content: Nurse led story telling intervention
Assessor/Researcher/HCPs involved: Nurse facilitator of sessions. Assessor unclear.
Cost: none to participant
Development rationale: development of intervention included in two phases using 6 outpatients with cancer
Outcome measure assessment: unstructured interview | Methods: unstructured interview
Outcome measure development/Pilot work: One question led process which was what was the experience of the group like for you. The interviewer then showed interest and probed answers
Duration of interview: 30 minutes
Analysis: Thematic analysis |
| Song et al. (2012) | Paradigmatic position: Post-positivism
Methodology: Mixed methods (no type given)
Aim: Consider the cancer survivor identity, what was internalised about the identity and consider what is shared during story telling and association to psychological health
Eligibility Criteria: 1) Diagnosis of cancer during childhood or adolescent and at the time of the study be aged between 18 - 29 2) off cancer treatment for 2 years and cancer free for 5 years 3) individuals with cognitive impairment as a symptom of their cancer were excluded | Participants: 14 participants between 18 - 29 No age
Cancer type: No details
Sampling Technique: Purposive from a telephone and mailing list
Setting: Face to face assessment
Treatment details: smart phone provided to participants. Website created for video sharing and social networking on mobile-web application.
Country: USA | Length: 6 Months
Content: Single face to face orientation session.
Across the time period individuals recoded their own video narratives and posted them to the site.
Assessor/Researcher/HCPs involved: A registered nurse and member of research team screened for eligibility.
Cost: None. Free smart phone provided.
Development rationale:
Outcome measure assessment: video narratives and psychosocial outcome measures including: “Who AM I”? Test (Kuhn and McPartland’s, 1954) Depression using Centre for Epidemiologic Studies-Depression Scale (CES-D; Radoff, 1977) Survivorship Self-efficacy (adaptation of Jerusalem and Schwarzer 1992) (no psychometric considerations for adapted test) | Methods: Video recordings of stories and specific assessment of outcome measures
Outcome measure development/Pilot work: Not applicable.
Duration of interview: 61 video clips at an average length of 211 words.
Analysis: Video clips used a-priori analysis looking at references to cancer, stereotypes and social identity and acceptance of saviour identity. |