Group

All pts

(%)

Std exam (%)

Age (years)

Range

(years)

History

Youth

JtSkt

SkinH

DysA

NmH

PE

BFSkt

Beig-

hton^b

SkinP

All AAD

1656 (100)

710 (100)

28 ± 14

0.2 - 73

33 ± 11^a

6.2 ± 2.6

6.2 ± 2.6

2.3 ± 1.3

11 ± 4.4

4.4 ± 2.4

18 ± 5.0

5.5 ± 3.2

6.2 ± 2.3

3.3 ± 1.5

Female AAD

1337 (81)

596 (84)

36 ± 10

0.2 - 73

35 ± 11

6.3 ± 2.6

6.4 ± 2.6

2.4 ± 1.3

12 ± 4.1

4.7 ± 2.3

18 ± 4.8

5.6 ± 3.2

6.5 ± 2.1

3.4 ± 1.5

Female-child

153 (9.2)

52 (7.3)

7.7 ± 3.4

0 - 12

20 ± 10

6.2 ± 3.0

3.5 ± 2.3

1.2 ± 1.1

6.6 ± 4.1

2.0 ± 2.0

15 ± 4.3

4.3 ± 2.7

6.0 ± 2.1

1.9 ± 1.3

Female-teen

287 (17)

126 (21)

16 ± 1.8

13 - 19

31 ± 8.3

6.5 ± 2.4

5.5 ± 1.9

2.1 ± 1.2

10 ± 4.0

4.2 ± 1.9

17 ± 4.6

5.6 ± 3.4

6.1 ± 2.1

3.2 ± 1.3

Female-adult

798 (48)

372 (53)

34 ± 8.2

20 - 49

38 ± 9.7

6.3 ± 2.5

7.0 ± 2.4

2.7 ± 1.2

13 ± 3.5

5.2 ± 2.1

19 ± 4.5

5.6 ± 3.0

6.6 ± 2.1

3.6 ± 1.4

Female-older

99 (6.0)

46 (6.5)

55 ± 5.3

50 - 76

38 ± 7.1

5.6 ± 2.0

7.3 ± 2.3

2.5 ± 1.1

13 ± 2.7

5.7 ± 1.7

18 ± 5.9

5.7 ± 3.5

6.3 ± 1.9

3.6 ± 1.4

Male AAD

319 (19)

114 (16)

24 ± 12

0.1 - 63

23 ± 9.6

5.4 ± 2.7

4.6 ± 2.1

1.5 ± 1.2

8.0 ± 4.3

2.6 ± 2.1

15 ± 5.6

5.3 ± 3.3

4.9 ± 2.3

2.9 ± 1.6

Male-child

92 (5.6)

31 (4.4)

8.1 ± 3.4

0 - 12

19 ± 9.4

5.7 ± 2.6

2.9 ± 1.7

1.2 ± 1.0

6.3 ± 4.0

2.0 ± 2.0

13 ± 5.3

3.4 ± 2.2

5.5 ± 2.2

2.5 ± 1.4

Male-teen

140 (8.5)

50 (7.0)

16 ± 1.8

13 - 19

23 ± 8.7

5.3 ± 2.3

5.0 ± 1.8

1.5 ± 1.1

8.0 ± 3.8

2.4 ± 2.0

16 ± 4.5

6.2 ± 3.1

4.7 ± 2.2

3.0 ± 1.5

Male-adult

58 (3.5)

21 (3.0)

22 ± 11

20 - 39

24 ± 9.0

5.3 ± 2.5

5.1 ± 1.9

1.5 ± 1.2

8.7 ± 4.0

2.9 ± 2.1

15 ± 5.4

6.0 ± 3.2

4.7 ± 2.2

3.0 ± 1.5

Male-older

29 (1.8)

12 (1.7)

29 ± 4.3

40 - 63

29 ± 6.1

5.6 ± 2.5

5.5 ± 2.0

1.7 ± 1.3

11 ± 3.4

3.9 ± 2.0

16 ± 5.1

5.7 ± 3.4

5.4 ± 2.0

2.6 ± 1.6

Hypermobile EDS

1138 (68)

447 (47 m)

29 ± 13

0.4 - 69

37 ± 9.2

6.8 ± 2.4

6.7 ± 2.3

2.5 ± 1.3

12 ± 3.7

5.0 ± 2.2

19 ± 4.3

5.7 ± 3.1

7.3 ± 1.6

3.5 ± 1.4

Classical EDS

329 (20)

176 (33 m)

29 ± 15

5.4 - 73

33 ± 11

5.8 ± 2.6

5.7 ± 2.4

2.2 ± 1.3

12 ± 4.4

4.3 ± 2.4

16 ± 4.7

5.8 ± 3.2

4.5 ± 1.9

3.2 ± 1.7

BJH

82 (5.0)

51 (24 m)

14 ± 11

0.3 - 48

16 ± 6.9

4.4 ± 2.5

3.2 ± 1.8

1.1 ± 1.2

4.5 ± 2.8

1.8 ± 1.9

14 ± 4.4

3.8 ± 2.6

5.6 ± 2.4

2.8 ± 1.4

Dysautonomia

79 (4.8)

24 (7 m)

28 ± 12

0.9 - 49

26 ± 9.3

3.8 ± 1.8

3.8 ± 2.3

1.5 ± 1.2

11 ± 3.6

3.9 ± 2.2

12.3 ± 4.8

4.5 ± 2.9

3.5 ± 2.2

2.6 ± 1.4

Not EDS

28 (1.7)

12 (6 m)

23 ± 19

0.2 - 63

8.4 ± 0.71

2.4 ± 0.63

1.5 ± .45

0.5 ± 0.45

3.0 ± 1.3

0.50 ± 0.45

5.6 ± 1.1

1.2 ± 1.0

3.1 ± 1.1

0.75 ± 0.74

Primary referral

602 (36)

314 (58 m)

26 ± 15

0.3 - 73

33 ± 15

6.6 ± 2.6

6.2 ± 2.7

2.3 ± 1.3

11 ± 4.7

4.3 ± 2.5

17 ± 5.3

5.4 ± 3.5

6.2 ± 2.2

3.3 ± 1.4

Cardiology referral

532 (32)

233 (19 m)

32 ± 15

6.6 - 69

36 ± 9.8

5.8 ± 2.6

6.4 ± 2.3

2.3 ± 1.3

13 ± 3.6

5.0 ± 2.0

16 ± 4.8

5.8 ± 3.0

6.2 ± 2.2

3.3 ± 1.5

Orthopedic referral

158 (10)

29 (9 m))

20 ± 15

5.9 - 51

26 ± 15

5.3 ± 2.6

5.1 ± 2.6

1.6 ± 1.5

8.3 ± 5.0

3.1 ± 2.3

16 ± 2.8

4.8 ± 2.0

5.6 ± 1.9

3.0 ± 1.5