| Authors | Journal | Year | Participants | Intervention | Context/ time | Results | Design |
| Madden K, et al. [ 9 ] | Journal of Palliative Medicine | 2019 | Children on PC | ePROMs in the evaluation of symptoms. | PC One time only | 1—Assessment of symptom burden 2—The PROM accurately captures the symptom of the participants. 3—Positive impact 4—Robust, standardized screening will help identify children in need of greater psychological support and less clinically evident symptoms. | 1 |
| Hoerger M, et al. [ 10 ] | Journal of Clinical Oncology | 2018 | Adults with newly diagnosed advanced LC or non-rectal CICG. | ePROMs in coping with a CFL. Quality of life assessment. | The first PCs and CFLs 18 months | 1—Evaluation of LFC adaptive capacity 2—Targeting more frequent visits and subsequent quality of life assessment improves patient outcomes. 3—Positive impact on the quality of life 4—No ethical decision conclusion | 4 |
| Sawatzky R, et al. [ 11 ] | Journal of patient-reported outcomes | 2018 | Adults in home PC and hospital PC | Quality of life assessment using a new specific ePROM | PC One time only | 1—Quality of life assessment 2—Use is feasible, but education and training are necessary. Healthcare personnel must be intentionally engaged. 3—Positive impact on quality of life (if used correctly) 4—No ethical decision conclusion | 5 |
| Smith S, et al. [ 12 ] | Nursing management | 2012 | Family members of patients with CP enrolled in the LCP pathway. | Evaluation of quality of life in the family prism. | PC between March 2011 and February 2012 | 1—Guidance for clinical decisions and PC pathways 2—Guide treatment of symptom burden and quality of life modifiers. 3—Patients sign up too late. Clinicians monopolize responses 4—Unethical steer. | 4 |
| Pokharel Y, et al. [ 13 ] | JAMA Cardiology | 2017 | Adults with IPF | ePROMs to assess disease progression and prognosis | CFL April 2003 - July 2008 | 1—LFC Forecast 2—No guidance for decision making 3—No impact on quality of life 4—No ethical decision conclusion | 4 |
| Clapham S, et al. [ 14 ] | International Journal for the Quality of Health Care | 2021 | Adults with CFL enrolled in PC on an inpatient or community basis. | Symptom management through ePROM (PCOC SAS) vs. proxy notification |
CFL + PC 2020 | 1—Assessment of symptom burden 2—It can guide decisions even in the most urgent needs. 3—Positive impact on patients in better condition. Notification by delegation is preferred in the most fragile patients. 4—May lead to a “good death”. | 10 |
| Fassbender K. [ 15 ] | Journal of Palliative Medicine | 2018 | Patients diagnosed with solid tumors eligible for clinical trials. | Evaluation of quality of life in patients enrolled in cancer trials. | Clinical trials PC + Oncology Not reported | 1—Quality of life assessment 2—See if the implantation of PC is appropriate for the patient. Orient the possible initiation of PC 3—Positive impact on the quality of life 4—No response | 2 |
| Lowe JR, et al. [ 16 ] | Journal of Palliative Medicine | 2018 | Patients with acute myeloid leukemia | Description of the patient’s last six months prior to death. | PC February 2014 - March 2015 | 1—Use in the assessment of quality of life, symptom burden, distress, number and duration of hospitalizations (including ICU) or referral for PC 2—Does not serve to guide decisions 3—No impact 4—Sheds light on the unmet needs of AML patients, especially those of PC. | 6 |
| Bausewein C, et al. [ 17 ] | Health and quality of life outcomes | 2011 | PC Professionals | Reasons not to use ePROMs in the PC. Practical uses of ePROMs in PC clinical practice. | PC October and November 2009 | 1—Provision of information, guidance and training to patients. 2—Yes, it is. 3—Positive impact on healthcare 4—A good supply of information leads to better decisions, which in turn lead to ethical decisions in the PC. | 9 |
| Bakitas M, et al. [ 18 ] | BMC Palliative Care | 2017 | Patients with heart failure (AHA Stage C/D; NYHA Class III/IV) | Introduction of early PC in patients with HF and undergoing complex therapy. | The first PCs and CFLs July 2013-December 2015 | 1—Provide information on the acceptance of a specific protocol (ENABLE CHF-PC). 2—There is no guidance in decision making. 3—No impact on welfare 4—No decision direction | 7 |
| Kane P, et al. [ 19 ] | Palliative medicine | 2018 | Patients with advanced chronic heart failure | Inclusion of palliative-specific PROMs. Assessment of symptom burden and quality of life. | The first PCs and CFLs September 2014 until February 2015 | 1—Better identification of patients with ACF for referral to Palliative Care ethical decision 2—Use to guide a strategy for changing classifications in the ACHF 3—If it is directed as the conclusions of the study state, it has a positive impact, improving access to palliative care in these patients. 4—If access to palliative care is improved, we are making the most of | 7 |
| Rogers J, et al. [ 20 ] | Journal of the American College of Cardiology | 2017 | Patients with AHF and PC intervention | Evaluate whether the CP intervention is beneficial in conjunction with an evidence-based element of care for HF. | CFL + PC August 2012 and June 2015 | 1—Assessment of quality of life and symptom burden in both lines of care. 2—There is no guidance in decision making. 3—Palliative care had a positive impact on well-being (not ePROMs directly). 4—Helped to identify the need for PC, therefore more ethical | 3 |
| Matsuda A, et al. [ 21 ] | Journal of Cancer Prevention in Asia and the Pacific | 2019 | Patients over 20 years of age who have been diagnosed with cancer and have discontinued curative treatment. |
Assessment of quality of life in cancer patients without curative treatment intention. | PC + Oncology May 2015 to December 2018 | 1—Assessment of quality of life in cancer patients with no intention of curative treatment. 2—It is used to guide palliative strategies. 3—Positive effect on well-being 4—Not addressed | 8 |