People with DS that lives at home

N (%)

People with

DS that does not live at home

N (%)

Total

N (%)

Has caregiver already made a detailed planning for the person with DS future?

Yes

48 (35.5)

41 (30.1)

89 (65.6)

No

29 (21.3)

5 (3.7)

34 (25.0)

I don’t know

13 (9.6)

0 (0.0)

13 (9.6)

Total

90 (66.2)

46 (33.8)

136 (100.0)

What actions have been taken to plan the future of the person with DS?

None. They collect information when it is the time

26 (19.1)

16 (11.8)

42 (30.9)

I wouldn’t know

20 (14.7)

3 (2.2)

23 (16.9)

Preliminary contacts have been taken with foster homes or others health-related facilities

15 (11.0)

18 (13.0)

33 (24.3)

Some information have been requested to people who have been in the same condition

10 (7.4)

6 (4.4)

16 (11.8)

No one

9 (6.6)

0 (0.0)

9 (6.6)

Person with DS will remain at home with brother or sister

7 (5.1)

0 (0.0)

7 (5.1)

Request of information to people who

had faced up to the same problems

0 (0.0)

3 (2.2)

3 (2.2)

Other

3 (2.2)

0 (0.0)

3 (2.2)

Total

90 (66.2)

46 (33.8)

136 (100.0)

Even if no detailed planning for his/her future has been made, where would caregiver like or prefer him/her to stay, and who would caregiver like to look after him/her?

In his/her relative’s house

(siblings, aunts and uncles, cousins, etc.)

43 (31.6)

9 (6.6)

52 (38.2)

In a group home with assistance from family members and relatives (brothers, sisters, uncles, aunts, cousins, etc.)

18 (13.2)

18 (13.2)

36 (26.5)

In an assisted-living facility with assistance from family members and relatives (brothers, sisters, uncles, aunts, cousins, etc.)

9 (6.6)

11 (8.1)

20 (14.7)

I wouldn’t know

7 (5.1)

5 (3.7)

12 (8.8)

At home with a caregiver

6 (4.4)

0 (0.0)

6 (4.4)

At home with one or more than one roommates

5 (3.7)

0 (0.0)

5 (3.7)

At home but next to a relative’s house (siblings, aunts and uncles, cousins, etc.)

2 (1.5)

2 (1.5)

4 (2.9)

Other

0 (0.0)

1 (0.7)

1 (0.7)

Total

90 (66.2)

46 (33.8)

136 (100.0)