| People with DS that lives at home N (%) | People with DS that does not live at home N (%) | Total N (%) |
Has caregiver already made a detailed planning for the person with DS future? |
|
|
|
Yes | 48 (35.5) | 41 (30.1) | 89 (65.6) |
No | 29 (21.3) | 5 (3.7) | 34 (25.0) |
I don’t know | 13 (9.6) | 0 (0.0) | 13 (9.6) |
Total | 90 (66.2) | 46 (33.8) | 136 (100.0) |
What actions have been taken to plan the future of the person with DS? |
|
|
|
None. They collect information when it is the time | 26 (19.1) | 16 (11.8) | 42 (30.9) |
I wouldn’t know | 20 (14.7) | 3 (2.2) | 23 (16.9) |
Preliminary contacts have been taken with foster homes or others health-related facilities | 15 (11.0) | 18 (13.0) | 33 (24.3) |
Some information have been requested to people who have been in the same condition | 10 (7.4) | 6 (4.4) | 16 (11.8) |
No one | 9 (6.6) | 0 (0.0) | 9 (6.6) |
Person with DS will remain at home with brother or sister | 7 (5.1) | 0 (0.0) | 7 (5.1) |
Request of information to people who had faced up to the same problems | 0 (0.0) | 3 (2.2) | 3 (2.2) |
Other | 3 (2.2) | 0 (0.0) | 3 (2.2) |
Total | 90 (66.2) | 46 (33.8) | 136 (100.0) |
Even if no detailed planning for his/her future has been made, where would caregiver like or prefer him/her to stay, and who would caregiver like to look after him/her? |
|
|
|
In his/her relative’s house (siblings, aunts and uncles, cousins, etc.) | 43 (31.6) | 9 (6.6) | 52 (38.2) |
In a group home with assistance from family members and relatives (brothers, sisters, uncles, aunts, cousins, etc.) | 18 (13.2) | 18 (13.2) | 36 (26.5) |
In an assisted-living facility with assistance from family members and relatives (brothers, sisters, uncles, aunts, cousins, etc.) | 9 (6.6) | 11 (8.1) | 20 (14.7) |
I wouldn’t know | 7 (5.1) | 5 (3.7) | 12 (8.8) |
At home with a caregiver | 6 (4.4) | 0 (0.0) | 6 (4.4) |
At home with one or more than one roommates | 5 (3.7) | 0 (0.0) | 5 (3.7) |
At home but next to a relative’s house (siblings, aunts and uncles, cousins, etc.) | 2 (1.5) | 2 (1.5) | 4 (2.9) |
Other | 0 (0.0) | 1 (0.7) | 1 (0.7) |
Total | 90 (66.2) | 46 (33.8) | 136 (100.0) |