| Total sample (N = 136) | Mean (range) | N (%) |
| Data collection |
|
|
| Northern Italy |
| 86 (63.3) |
| Central Italy |
| 44 (32.3) |
| Southern Italy |
| 6 (4.4) |
| Family Members (N = 68) |
|
|
| Mean age (range) | 64.7 (39 - 92) |
|
| Female |
| 46 (67.6) |
| Relationship with the person with DS |
|
|
| Parents: Mean age (range) | 78.6 (67 - 92) | 19 (27.9) |
| Siblings: Mean age (range) | 59.9 (39 - 82) | 42 (61.8) |
| Family members: Mean age (range) | 59.8 (39 - 78) | 7 (10.3) |
| Education |
|
|
| Primary school |
| 9 (36.8) |
| Secondary school |
| 11 (16.2) |
| High school |
| 23 (33.8) |
| Degree |
| 9 (13.2) |
| Master degree/higher |
| 16 (23.6) |
| Marital status |
|
|
| Single |
| 8 (11.8) |
| Married |
| 44 (64.7) |
| Cohabitant |
| 3 (4.4) |
| Divorced |
| 3 (4.4) |
| Widow |
| 10 (14.7) |
| Work conditions |
|
|
| Employee |
| 31 (45.6) |
| Not employee |
| 2 (2.9) |
| Retired to work |
| 35 (51.5) |
| Health Professionals (N = 68) |
|
|
| Mean age (range) | 45.6 (23 - 63) |
|
| Female |
| 55 (80.9) |
| Education |
|
|
| Secondary school |
| 2 (2.9) |
| High school |
| 20 (29.4) |
| Degree |
| 34 (50.1) |
| Master degree/higher |
| 12 (17.6) |
| Marital status |
|
|
| Single |
| 13 (19.1) |
| Married |
| 42 (61.8) |
| Cohabitant |
| 4 (5.9) |
| Divorced |
| 9 (13.2) |
| Employment |
|
|
| Educators |
| 52 (76.5) |
| Social health operators |
| 7 (10.3) |
| Nurses |
| 4 (5.9) |
| Psychiatric Rehabilitation Technicians |
| 2 (2.9) |
| Social workers |
| 2 (2.9) |
| Something else |
| 1 (1.5) |