Insufficient care

experience including treatment lacking

empathy and sympathy that affected dignity

Articles: 1, 3, 11, 15, 16, 23, 27, 28, 29, 37, 38, 39, 42, 43, 46

Quant 7/17 or 41%

Articles: 1Q, 6Q, 7Q, 10Q, 11Q, 13Q, 16Q

1) Treatment that lacked empathy including experiences which were perceived as impersonal and undignified, that lacked care and compassion**

2) This could be more prevalent when this was identified as a need from the patient

The value of emotional support and being able to just listen and provide empathy

Qual 20/49 or 41%

2, 3, 4, 8, 13, 14, 15, 16, 17, 20, 25, 28, 29, 32, 33, 37, 42, 43, 45, 49

Quant3/17 or 18%

Articles 6Q, 13Q, 15Q

1) Emotional support was required, this included listening, giving empathy and sympathy and being respectful**

2) The ability to listen, be sensitive to patients needs was highly valued**. This support helped the patient feel

welcomed and valued

3) There was general satisfaction with sympathy and kind treatment from HCP groups

Provision of information, trust and empowerment

Qual 8/49 or 16%

16, 20, 23, 26, 34, 37, 41, 42

1) Interactions could empower patients when the patient perceived the relationship as a partnership and experienced choice**

Sub-theme 2.2 Internal Psychological factors

Readiness to receive information

Qual 10/49 or 20.4%

Articles: 2, 3, 7, 12, 17, 42, 43, 44, 45, 46

Quant 6/17 or 35%

Articles: 2Q, 7Q, 11Q, 13Q, 14Q, 16Q

1) There were times (notably at diagnosis) when patient’s mental well-being meant they were not able to consider information given by HCPs. Distinct emotions and

specific adaptation related responses influenced this.

Factors that influenced the ability or desire to ask questions

Qual 5/49 or 10.2%

Articles: 4, 7, 42, 45, 50