Area of

informational need

Wants and expectations (support from

qualitative articles = ^a, support from

quantitative articles = ^b, support from both = ^c)

Experiences of informational provision (support from qualitative articles = ^a,

support from quantitative articles = ^b,

support from both = ^c)

Support from Research

When was the

information needed

Timing of

information given

Information before a diagnosis was received or early information^c

Expectation:

Qual: 9/49 (8%)

Articles: 3, 4, 12, 15, 19, 23, 36, 48, 49

Quant: 4/17 (24%)

Articles: 1Q, 3Q, 5Q, 13Q

Needs and

experiences

considering the MS and symptoms

General informational provision

The meaning of diagnosis^c

Information around the symptoms and how to identify that an attack was occurring^c

What change in symptoms to expect, the

prospects of getting worse^c

Role of different HCPs^b

Specific information provision

Importance of hereditary information^b

Physical functioning and problems including; walking and balance, bladder and bowel,

fatigue, overheating, sexual problems^b

Information around psychological problems including stress and emotional changes^b

Understand the medication they were taking^c

Information on how to self-manage^a

Identification of action, treatments or

rehabilitation that could be taken^c

Current research being undertaken^b

Poor Experiences of General informational provision

Patients identified not receiving adequate

advice or information about what is happening from doctors^c

Patient left with unanswered questions due to; not understanding information at time or not remembering details^a

More information about MS required^b

Poor Experiences Specific informational

provision

Bowel and bladder^b

Pain^b

End of life care^a

Expectation:

Qual: 9/49 (8%)

Articles: 3, 4, 12, 15, 19, 23, 36, 48, 49

Quant: 5/17 (29%)

Articles: 1Q, 3Q, 5Q, 12Q, 13Q

Poor Experiences

Qual: 22/49 (45%)

Articles: 2, 3, 4, 6, 9, 10, 11, 15, 17, 19, 20, 23, 24, 28, 30, 36, 37, 42, 45, 47, 48, 49

Quant: 4/17 (24%)

Articles: 3Q, 9Q, 10Q, 16Q

Information giving related to service provision and needs

General information

If free services and agencies were available^a

what entitlements and financial support the patient had, further to this where to get money in times of trouble^a

what applications could be made was identified some quantitative study^b

Poor Experiences of General informational provision

Deficiency of information around services and benefit entitlements^a

Expectation:

Qual: 10/49 (20%)

Articles: 2, 5, 10, 11, 12, 13, 15, 24, 44, 48

Quant: 3/17 (18%)

Articles: 5Q, 11Q, 12Q