Category | Items | Consensus rate (%) |
Thoughts on long-term care | Do you want to know more about the course of treatment and the patient’s condition? | 97.8 |
Do you want to know information regarding long-term care? | 95.6 | |
Are you worried about what to do if you have a seizure? | 95.6 | |
Do you want to use the available social resources? * Examples of social resources: systems, facilities, funds, etc. | 95.6 | |
Do you want to get rid of the patient’s pain? | 93.3 | |
Do you feel it difficult to lead a long-term care life after discharge? | 93.3 | |
Are you worried if you can support your patient’s feelings? | 93.3 | |
Do you ever feel anxious about your patient being in trouble when you are not with them? | 88.9 | |
Thoughts on the future | Do you have any concerns about your future life? | 95.6 |
Are you worried if you can no longer care for yourself in the future? | 93.3 | |
Is there anything you care about your family other than the patient? | 91.1 | |
Are you worried about your patient’s ability to lead a daily life after discharge? | 91.1 | |
Communication with patients | Do you ever use non-verbal communication methods such as speaking or gesturing by changing words and expressions to communicate with patients? | 95.6 |
Do you feel confused when patients have difficulty expressing their intentions in words? | 95.6 | |
Can you take a long time to understand the patient’s words? | 93.3 | |
Do you feel happy when you have a conversation with your patient? | 91.1 | |
Do you feel confused about the changes in the patient’s personality? | 91.1 | |
Environment for long-term care | Do you ever want someone to talk to you about possible changes and how to deal with them? | 97.8 |
Is there a financial burden? | 93.3 | |
Is there anyone close to you that you can trust? | 91.1 | |
Do you feel anxious when you hear information about a patient’s illness? | 88.9 | |
| Is it likely that you will be able to receive support from those around you when you are not feeling well? | 88.9 |
Do you ever want to interact with a family member who supports a patient with the same illness? | 88.9 | |
Is there anyone you can talk to? | 88.9 | |
Family acceptance and grief over illness and symptoms | Are you worried about the patient’s recurrence of illness or worsening of symptoms? | 97.8 |
Are you worried about the appearance of dementia symptoms and their exacerbations? * Dementia symptoms are a decrease in the ability to understand and judge stories. Dementia-like symptoms such as forgetfulness and depression | 93.3 | |
Are you worried about the appearance and exacerbation of paralysis? | 93.3 | |
Do you accept that the patient has become ill? | 88.9 | |
Is there anything you would like to do with your patient? | 88.9 | |
Do you ever get confused when you see a patient sad? | 88.9 | |
Thoughts on treatment | Do you feel the effect of treatment by watching the patient’s (symptomatic) course? | 93.3 |
Can you ask hospital staff such as doctors and nurses? | 93.3 | |
Are there times when a patient is worried about being able to tolerate the side effects of treatment? | 91.1 | |
Would you like to hear from doctors at other institutions about your patient’s treatment? | 91.1 | |
Do you want to do what you can to treat your patients? | 88.9 | |
Quality of life (QOL) of caregivers | Can your feelings be affected by the ups and downs of the patient’s mood? | 93.3 |
Does long-term care interfere with your work? | 93.3 | |
Are you careful about your health? | 91.1 | |
Do you have a meal? | 91.1 | |
Do you think that nursing care will prevent you from doing what you want to do? | 88.9 | |
Are you able to take a break? | 88.9 | |
Thoughts on patient intentions | Do you ever want to know the patient’s true intentions? | 97.8 |
Do you want to respect the patient’s intentions? | 95.6 | |
Can you talk to the patient about his or her illness? | 93.3 | |
Do you feel that the patient’s perception of illness is different between the patient and yourself? | 91.1 | |
Can you talk to the patient about your future life? | 91.1 | |
Is it painful to be entrusted with important treatment decisions on behalf of the patient? | 88.9 |