Category

Items

Consensus rate (%)

Thoughts on long-term care

Do you want to know more about the course of treatment and the patient’s condition?

97.8

Do you want to know information regarding long-term care?

95.6

Are you worried about what to do if you have a seizure?

95.6

Do you want to use the available social resources? * Examples of social resources: systems, facilities, funds, etc.

95.6

Do you want to get rid of the patient’s pain?

93.3

Do you feel it difficult to lead a long-term care life after discharge?

93.3

Are you worried if you can support your patient’s feelings?

93.3

Do you ever feel anxious about your patient being in trouble when you are not with them?

88.9

Thoughts on the future

Do you have any concerns about your future life?

95.6

Are you worried if you can no longer care for yourself in the future?

93.3

Is there anything you care about your family other than the patient?

91.1

Are you worried about your patient’s ability to lead a daily life after discharge?

91.1

Communication with patients

Do you ever use non-verbal communication methods such as speaking or gesturing by changing words and expressions to communicate with patients?

95.6

Do you feel confused when patients have difficulty expressing their intentions in words?

95.6

Can you take a long time to understand the patient’s words?

93.3

Do you feel happy when you have a conversation with your patient?

91.1

Do you feel confused about the changes in the patient’s personality?

91.1

Environment for long-term care

Do you ever want someone to talk to you about possible changes and how to deal with them?

97.8

Is there a financial burden?

93.3

Is there anyone close to you that you can trust?

91.1

Do you feel anxious when you hear information about a patient’s illness?

88.9

Is it likely that you will be able to receive support from those around you when you are not feeling well?

88.9

Do you ever want to interact with a family member who supports a patient with the same illness?

88.9

Is there anyone you can talk to?

88.9

Family acceptance and grief over illness and symptoms

Are you worried about the patient’s recurrence of illness or worsening of symptoms?

97.8

Are you worried about the appearance of dementia symptoms and their exacerbations? * Dementia symptoms are a decrease in the ability to understand and judge stories. Dementia-like symptoms such as forgetfulness and depression

93.3

Are you worried about the appearance and exacerbation of paralysis?

93.3

Do you accept that the patient has become ill?

88.9

Is there anything you would like to do with your patient?

88.9

Do you ever get confused when you see a patient sad?

88.9

Thoughts on treatment

Do you feel the effect of treatment by watching the patient’s (symptomatic) course?

93.3

Can you ask hospital staff such as doctors and nurses?

93.3

Are there times when a patient is worried about being able to tolerate the side effects of treatment?

91.1

Would you like to hear from doctors at other institutions about your patient’s treatment?

91.1

Do you want to do what you can to treat your patients?

88.9

Quality of life (QOL) of caregivers

Can your feelings be affected by the ups and downs of the patient’s mood?

93.3

Does long-term care interfere with your work?

93.3

Are you careful about your health?

91.1

Do you have a meal?

91.1

Do you think that nursing care will prevent you from doing what you want to do?

88.9

Are you able to take a break?

88.9

Thoughts on patient intentions

Do you ever want to know the patient’s true intentions?

97.8

Do you want to respect the patient’s intentions?

95.6

Can you talk to the patient about his or her illness?

93.3

Do you feel that the patient’s perception of illness is different between the patient and yourself?

91.1

Can you talk to the patient about your future life?

91.1

Is it painful to be entrusted with important treatment decisions on behalf of the patient?

88.9