Category | Subcategory | Example codes |
Changes in perspective or approach | Worrying alone and dwelling | It is easy to dwell on it all alone, and about a year and a half ago, I developed insomnia and depression for which I now take medicine. (e) |
Questioning perspective or way of thinking | From raising them, I have begun feeling like it is not necessary for kids to do things all together, like singing and sports day. (g) | |
Changing perspective or way of thinking | One time I stopped everything, stopped saying, “they cannot do that,” and I found they could do certain things really well, like their amazing memory, and they often really surprise me. (j) | |
Creating distance with the child with ASD | Their primary care doctor told me that it is much better for them to be around other kids than with parents all the time, so I decided to send them to daycare. (f) | |
The child is irreplaceable | Certainly it is a lot of work, but I would be lonely without them, and they are definitely irreplaceable. (i) | |
Reflecting on themselves | I think I was always trying to make them more normal. (h) | |
Feeling it is difficult to keep living | When I got the diagnosis, I felt it was too hard to continue living in this family and that maybe I would be better off dead, but their older sister was also there, so I realized I could not die. (g) | |
Husband does not understand | They see things totally differently, and sometimes I am a little shocked when they do not understand what I am feeling at all. (b) | |
Someone present who does not understand | Their grandparents discriminate against disabilities (have a discriminatory attitude) and do not really accept it, so I do not talk about my son to them. (f) | |
Receiving help from people around them | Some things they could not do alone | We can generally work to create a daily routine at home, but we cannot do some things alone. (i) |
Getting help from people around them | We were out, and I took them to a corner to wait for them to calm down, and an older person said to me, “You can do it.” I felt like (what I was doing) was right. (c) | |
Getting help from their parents | About parenting, I get better advice when I ask my parents than when I ask my husband. I talk to my mother more often than my father. (i) | |
Talking to others | Sometimes I feel better when I talk to my older sister. (g) | |
Getting help from their husband | The one who helps me is my husband, I think. For parenting too, he loves kids and plays with them quite a bit. (g) |