Category | Sub category | Parents’ |
Concern | SMID child’s symptom parents’ work | ・ SMID child’s symptoms that might emerge with their growth and development ・ Short life span of SMID child ・ Unavoidable work absence and tardy caused by child’s deconditioning |
Facilities | ・ Lack of facilities can take care of children with medical care ・ Whether care staff in facilities can take care of SMID child | |
Social activity | ・ Impossibility of going outside, for example absence of siblings’ school event ・ There is a member cares around an eye about SMID child, or hide him/her | |
Siblings | ・ Siblings’ burden with SMID child such as a hazing ・ Impossibility of going to hospital when siblings’ health becomes bad | |
Anxiety about future | SMID child’s life | ・ SMID child’s livings after graduation of school ・ No useful facilities after their parents died ・ Transition from home rearing to take care in facility |
Insufficient support | ・ Lack of extrafamilial support ・ Grand parents’ nursing care in the future | |
Economy | ・ Concerns about a domestic economy | |
Parents’ health | ・ Health condition of caregivers ・ Health condition of spouse keeping work hard | |
Siblings | ・ Siblings’ future ・ Don’t want to let siblings force take care of SMID child after parents died ・ Not able to let siblings do what they want | |
Required support | Support in facilities | ・ Home care services can provide hospitable care to SMID child ・ Childcare service after school time ・ Convenient respite care services or short stay facilities |
Visiting service | ・ Support for safe passage ・ Person who understands SMID child and families, and can take care of them 24-hour | |
Coodination | ・ Coordination with SMID child’s condition and available facilities ・ Strong connection with public service and residential community | |
Support for caregivers to do what they want | ・ Support for primary caregiver can work full time | |
Adviser | ・ Advice for planning SMID child’s future direction ・ Adviser who know well SMID child and family’s situation ・ Support in an acute situation or disaster | |
Support for siblings | ・ Counseling system for siblings | |
Economical support | ・ Subsidy for preventing bedsore |