Category

Sub category

Parents’

Concern

SMID child’s symptom parents’ work

・ SMID child’s symptoms that might emerge with their growth and development

・ Short life span of SMID child

・ Unavoidable work absence and tardy caused by child’s deconditioning

Facilities

・ Lack of facilities can take care of children with medical care

・ Whether care staff in facilities can take care of SMID child

Social activity

・ Impossibility of going outside, for example absence of siblings’ school event

・ There is a member cares around an eye about SMID child, or hide him/her

Siblings

・ Siblings’ burden with SMID child such as a hazing

・ Impossibility of going to hospital when siblings’ health becomes bad

Anxiety about future

SMID child’s life

・ SMID child’s livings after graduation of school

・ No useful facilities after their parents died

・ Transition from home rearing to take care in facility

Insufficient support

・ Lack of extrafamilial support

・ Grand parents’ nursing care in the future

Economy

・ Concerns about a domestic economy

Parents’ health

・ Health condition of caregivers

・ Health condition of spouse keeping work hard

Siblings

・ Siblings’ future

・ Don’t want to let siblings force take care of SMID child after parents died

・ Not able to let siblings do what they want

Required support

Support in facilities

・ Home care services can provide hospitable care to SMID child

・ Childcare service after school time

・ Convenient respite care services or short stay facilities

Visiting service

・ Support for safe passage

・ Person who understands SMID child and families, and can take care of them 24-hour

Coodination

・ Coordination with SMID child’s condition and available facilities

・ Strong connection with public service and residential community

Support for caregivers to do what they want

・ Support for primary caregiver can work full time

Adviser

・ Advice for planning SMID child’s future direction

・ Adviser who know well SMID child and family’s situation

・ Support in an acute situation or disaster

Support for siblings

・ Counseling system for siblings

Economical support

・ Subsidy for preventing bedsore