(N = 65) | ||
n/mean ± SD | %/range | |
Children with SMID | (n = 34) | |
Current age | 10.4 ± 5.03 | 3 - 22 |
Age of onset | 0.65 ± 1.64 | 0 - 8.5 |
Gender | ||
Boy | 16 | 48% |
Girl | 17 | 52% |
Diagnoses (multiple answers) | ||
cerebral palsy | 9 | 20.5% |
epilepsia | 7 | 15.9% |
PVL (periventricular leukomalacia) | 5 | 11.4% |
chromosomal abnormality | 5 | 11.4% |
gene defect | 3 | 6.8% |
acute encephalipathy | 3 | 6.8% |
hypoxic ischemic encephalopathy | 3 | 6.8% |
influenza-associated encephalopathy | 2 | 4.5% |
cytomegalovirus infection | 2 | 4.5% |
pineoblastoma | 1 | 2.3% |
syringomyelia | 1 | 2.3% |
holoprosencephaly | 1 | 2.3% |
diffuse axonal injury | 1 | 2.3% |
hydrocephalus | 1 | 2.3% |
Type of treatment given (multiple answers) one or more | 22 | 64.7% |
Suctioning | 20 | 31.7% |
Tubal feeding | 16 | 25.4% |
Respiratory management | 10 | 15.9% |
Inhalation | 8 | 12.7% |
Urethral catheterization | 4 | 6.3% |
Colon irrigation | 3 | 4.8% |
CV catheter management | 1 | 1.6% |
Tracheotomy management | 1 | 1.6% |
Nothing | 12 | 35.3% |
Family caregivers | (N = 54) | |
Age | 41.5 ± 6.16 | 30 - 61 |
Gender |