Category

Code

Main narratives

Respect as individuals

Celebrate proud feelings of work, academic background, etc.

She repeatedly talks about girls’ schools and work. I told her that I want to talk, so I listened while praising. (A)

Tell my daughter, “You’re a smart, wonderful mother in the truest sense.” (C)

Do not deny words and actions

I do recreational activities that I am good at, not too easy to make a fool of myself. (F)

Some people are not aware of dementia. It is a sensitive area so be delicate and not irritating. (H)

Tell the person in question who does not try to move on his or her own and their spouse that they are “doing their best”. (J)

Be recognized as a necessary entity

Tell the person that they are useful to the family by their doing the housework. (B)

Hold games on day service and give a certificate of award. When he is called a shogi teacher, he is very happy. I think I’m needed so much. (D)

Bringing out and leveraging what you can do with your current capabilities and linking care

Determine what you can do by taking advantage of the work and hobbies you have done over the years.

I heard from my family that I couldn’t walk by myself, but I pushed the wheelchair and moved about the room (C).

Look at what you can do, what you are good at, and how much you can make use of your abilities. Consider whether you can live at home for as long as possible, so as not to undermine your current life. (H)

Try to do what you liked before. Even if you don’t remember it in your mind, your hands still remember it. Pull it out. (F)

I make one attempt at what I was good at and make them think I was able to do it. (F)

Sharing information with multiple organizations and occupations and linking care

Tell the day service that you have been able to do home-visit nursing and will continue to do so. (F)

I have heard that they are good at knitting, dressmaking, and Japanese dressmaking, so I have shared information with the staff so that they can do something with the day service (H).

Support family members to confirm their satisfaction with life

Recognize and celebrate family involvement and hard work

She told her husband, “You can’t move because you have dementia, but you can’t do it.” He said, “You can’t help because you’re ill,” and she said, “You’ve worked hard” (L).

Meet the anxiety of the family

Say to a wife who is worried about her husband’s memory impairment, “Maybe it’s something you want to forget”. (I)

When I first heard my mother-in-law say “I think of my daughter-in-law as my own daughter”, I was so happy and I want to take more care of her. (B)

I tell my husband that “I am a person who does not change with age” (L).

Assess the burden of long-term care and provide guidance on long-term care skills

In visiting rehabilitation, we focus on how much the person is moving, what kind of care the family is providing, and how much they are burdened. (J)

Tell your husband that speaking and laughing during meals are important things that your family can give you. (L)

See if older adults with dementia and their families live peacefully.

No matter how many times she hears the same thing, each time she answers, laughing, rather than being gentle or angry. So, those two feel good, and I think they’ll continue to the end. (C)

The chair in the living room is in his position, and he is always with the dog in the sun. (E)

I think I’m happy now because of my facial expression and conversation with my husband (L).

Supporting Decision-Making with Forecasts of Future Progress

Managing care services for older adults with dementia, considering comfort and the environment

I love to interact with people, so I would like to live with friends and everybody in the community as I am connected with them. I also see a couple walking hand-in-hand in the park. (D)

Home-visit nurses must be familiar not only with illness but also with life. Otherwise it is unacceptable to the individual or family. (F)

I wonder where it is comfortable for the person per se. Coordinate use of services in areas where the individual can enjoy living. (G)

I can understand how he wants to continue his current life for as long as possible. I think there is a conflict in accepting a new environment. In the midst of a variety of services, gradually proceed through the stages. (H)

Confirm with family members where and how the older adult would meet the end of their life.

The person believes that the day service he uses is going to work and says he is satisfied. I am talking with my eldest daughter (G) that, in view of the progression of dementia, admission to an institution is unavoidable because of the burden on my older adult husband’s body. (G)

Think about how you want to end your service as you coordinate it. I hope my family will be satisfied with nursing care at the final stage. (I)