ID

Age of SMID child

Diagnoses

Family members

Social services in use/schools

1

14

Acute encephalopathy

2 adults and 3 siblings

・ Preschool

・ Childcare support temporarily used for siblings

・ Special-needs school

2

7

Periventricular leukomalacia, epilepsy (WEST syndrome)

2 adults

・ Chat meetings in rehabilitation room

・ Hospital visits: 10 days a month

・ Home care assistance: once a week

3

14

Periventricular leukomalacia

4 adults and 2 siblings

・ Special-needs school: 5 days a week

・ OT and PT: 1 - 2 times a month

・ Rehabilitation center for disabled children → Kindergarten

4

7

Hypoxic encephalopathy

2 adults and 3 siblings

・ Home-visit education: once a week

・ Home-visit nursing: once a week, home-visit bathing: twice a week, rehabilitation: once a week

・ Inspection of respirator and home-visits by a doctor: every fortnight

・ Respite care: once every 3 months (for 1 week)

5

10

Syringomyelia (atypical)

3 adults and 3 siblings

・ Home-visit nursing/bathing, home visits by a doctor

・ Home-visit education: 3 times a week

・ Respite care: once every 3 months (6 nights and 7 days)

・ Home care assistance: (used up to 6 hours per time, 2 - 3 times a month)

6

16

Influenza-associated encephalopathy

5 adults and 2 siblings

・ Rehabilitation (PT): once a month

・ School: Monday-Friday, After-school childcare: 2 days a week

・ Home care assistance, home-visit bathing, family support services

・ Respite care: occasional use on weekends

7

5

New influenza-associated encephalopathy

2 adults and a sibling

・ Respite care: once every 3 months (for 6 days)

・ Home-visits by a doctor: once a month

・ Home care assistance: once a week, rehabilitation, home-visit nursing/bathing

8

7

Cerebral palsy

2 adults and a sibling

・ Home-visits by a doctor: once a months, ST

・ Free school: 5 days a week

・ OT, PT: once a month

9

12

Fukuyama-type congenital muscular dystrophy

2 adults and a sibling

・ Special-needs school: weekdays

・ Home care assistance: 3 times a week

・ Visiting a doctor: once every 3 months, rehabilitation: 3 times a month

・ Respite care at a medical welfare facility