23) Koch & Kelly (1999)

Action research

8 (0♂) patients with MS

Sub-types

Not given

Mean age: not given

Age range: 38 -75 years

Mean time with illness: not given

Mean time until diagnosis: not given

Sampling: purposive

Eligibility: a) a diagnosis of MS, b) incontinence

Setting: not given

Study geographical location: United Kingdom

Data collection tool: focus groups discussing aspects around the aims

Study Aim: “identify strategies for successfully managing urinary incontinence and what is important for the women who live with it” (page 15)

Average interview time: not given

Interview time range: not given

Analysis: not given

24) Koch et al. (2001)

Action research

4 (0♂) patients with MS

Sub-types

Not given

Mean age: not given

Age range: not given

Mean time with illness: not given

Mean time until diagnosis: not given

Sampling: purposive

Eligibility: (a) a diagnosis of MS

Setting: MS community centre

Study geographical location: Australia

Data collection tool: focus group schedule. Consideration to question around experiences, perceptions and strategies associated with urinary incontinence.

Study Aim: “address a noticeable absence in the research literature about MS related urinary incontinence by providing an understanding of how men and women perceived and articulate the implications of this problem” (page 16 - 17)

Average interview time: 2 hours

Interview time range: not given

Analysis: not given

25) Malcomson et al. (2008)

Focus groups

13 (4♂) patients with MS

Sub types

6 RR

6 SP

1 PP

Mean age: 54 years

Age range: 40 - 67

Mean time with illness: 17.2 years

Mean time until diagnosis: not given.

Sampling: purposive

Eligibility: a) diagnosis of MS, b) self-belief that they were coping with the illness

Setting: not clear (likely MS community centre)

Study geographical location: United kingdom

Data collection tool: focus groups

Study Aim: “the primary aim of this study was to explore personal accounts and experiences of individuals with MS who felt able to cope with the disease in day-to-day life” (page 663)

Average interview time: 90 mins

Interview time range: not given

Analysis: thematic analysis

26) Lexell et al. (2009)

Grounded theory

10 (4♂) patients with MS

Sub types

8 SP

2 RR

Mean age: 53 years

Age range: 41 - 67 years

Mean time with illness: 17 years

Mean time until diagnosis: not given.

Sampling: purposive

Eligibility: (a) ‘moderate’ limitations in occupational performance, (b) ability to take part in the interview, (3) no disease influencing occupational performance.

Setting: Patients homes

Study geographical location: Sweden

Data collection tool: semi-structure interview considering experiences and occupations currently engaged in and if change had occurred over time

Study Aim: “gain an enhanced under-standing of how people with MS_ experience their engagement in occupations.” (page, 773)

Average interview time: 82 mins

Interview time range: 32 - 133 mins

Analysis: constant comparison method

27) McLaughlin and Zeeberg (1993)

Ethnography

Denmark

51 (20♂) patients with MS

Sub-types

Not given

Mean age: 40.8

Age range: 22 - 58 years

Mean time with illness: 11 years. Range 3 - 18 years.

Mean time until diagnosis: not given

USA

35 (17♂) patients with MS

Sub-types

Not given

Mean age: 42.4 years

Age range: 19 - 65 years

Mean time with illness: not given

Mean time until diagnosis: not given

Sampling: purposive

Eligibility: (a) patients with MS

Setting: Patient’s homes or workplace

Study geographical location: Denmark

Data collection tool: semi-structured interview schedule and structured interview schedule (self-care behaviour for MS inventory)

Study Aim: “compares the extent of self-care behaviours of groups with MS in Denmark and in the United States” (page, 318)

Average interview time:

Interview time range: 1 - 5 hours

Analysis: quantitative content analysis