| Name of the instrument (Abbreviation name) [Reference] | Items Format | Subscales (items) | Reliability [Cronbach alpha (α) Test-retest Inter-rater reliability] | Validity | Reliability tested in PD population [Reference] | [Reference]
|
| Care Management Stress Scale (CMS) [57] | 25 items 5-Point scale | No subscales | Not available | Not reported | α = 0.94 [11] | [11] |
| Caregiver Burden Inventory (CBI) [44] | 24 items 5-Point scale | Time-dependence burden (5) Developmental burden (5) Physical burden (4) Social burden (5) Emotional burden (5) | α = 0.73 - 0.86 | Construct | α = 0.94 [41] | [41] [62] [66] |
| Caregiver Burden Scale (CBS) [58] | 22 items 4-Point scale | General strain (8) Isolation (3) Disappointment (5) Emotional involvement (3) Environment (3) | α = 0.70 - 0.87 Environment α = 0.53 | Construct | α = 0.88 [31] | [31] |
| Caregiver Strain Index (CSI) [53] | 13 items Dichotomous (yes/no) | No subscales | α = 0.86 | Construct | Not reported | [54] |
| Family Caregiving Inventory (FCI) [46] | 102 items 5-Point scale | Strain from direct care (38) Strain from lack of resources (6) Strain from worry (10) Strain from role conflict (15) Strain from economic burden (4) Strain from mismatched expectations (3) Strain from increased tension (4) Strain from feelings of being manipulated (4) Global strain (4) | α > 0.70 for 6 of 9 scales for which Cronbach´s alpha was reported α < 0.55 for strain from mismatched expectations Test-retest reliability r > 0.60 | Not reported | α = 0.75- 0.98, except for strain from mismatched expectations, α = 0.57 [27] | [25] -[28]
|
| Modified Caregiver Strain Index (CSI) [55] | 13 items 3-Point scale | No subscales | α = 0.90 Test-retest reliability 0.88 | Not reported | Not reported | [12] [56] |
| Montgomery, Gonyea and Hooyman’s scale [59] | 22 items 5-Point scale | Subjective burden (13) Objective burden (9) | α = 0.85 (objective scale) α = 0.86 (subjective scale) | Not reported | Not reported | [32] |
| Multidimensional Caregiver Strain Index (MCSI) [60] | 18 items 5-Point scale | Physical strain (3) Social constraints (4) Financial strain (2) Time constraints (2) Interpersonal strain (5) Elder demanding/manipulative (2) | α = 0.75 - 0.85 Financial Strain α = 0.58 | Construct Criterion | α = 0.855 for total MCSI [65] | [65] |
| Neuropsychiatric Inventory Caregiver Distress Scale (NPI-CD) [52] | 12 (10) items 6-Point scale | No subscales | Test-retest reliability r = 0.92 Interrater reliability 0.96 | Criterion | Not reported | [33] [47] [49] -[51] |
| Relative Stress Scale (RSS) [45] | 15 items 5-Point scale | Personal distress ( 6) Life Upset (5) Negative feelings (4) | α = 0.72 - 0.88 | Construct | α = 0.94 for ‘Psychosocial burden’ based on 8 items of the RSS [30] | [29] [30] [64] |
| Zarit Caregiver Burden Interview (ZBI) [42] [43] | 22 items (originally 29 items) 5-point scale | No subscales
| Not reported | Construct validity negative | α = 0.93 [37] | [9] [34] -[39] [49] [50] [61] [63] |