| Specific information
MS society, MS support groups, counselling services, and MS specialist nursesb |
| Poor Experiences:
Qual: 4/49 (8%)
Articles: 10, 19, 27, 37
Quant: 1/17 (6%)
Articles: 9Q |
Needs and experiences of the HCPs | Information about specialists with knowledge about MSa | Poor Experiences of General informational provision
Lack of information from general practitioners and eye specialistsb
Poor experiences of specific informational needs
Patients reported experiences of being given the wrong information around diagnosisa
Some patients identified that HCPs were not able to diagnosis or identify the experience of MS related symptomsa
Patients expressed that some HCPs did not know enough leaving patients with unanswered questionsa
Inappropriate advice regarding treatment and regimes was identifieda
Information around the end of life care was identifieda
Good Experiences of general informational needs
General support for satisfaction with interactions were reportedb
Good experiences of specific informational needs
Qualitative valued by patients included efficient appointment, accurate diagnosis and identification of problemsa
Being responsive to questions and acknowledging limits of science and current knowledgea
Arranging follow up meetingsa | Expectation:
Quant: 1/49 (2%)
Articles: 9Q
Poor Experience
Qual: 15/49 (31%)
Articles: 4, 7, 8, 11, 19, 20, 23, 27, 30, 31, 35, 37, 38, 46, 48
Good Experiences:
Qual: 8/49 (16%)
Articles: 3, 24, 28, 29, 37, 42, 44, 49
Quant: 7/17 (41%)
Articles: 6Q, 7Q, 8Q, 9Q, 10Q, 13Q, 15Q |
|
| Poor experiences of specific informational needs | Expectation: |