Specific information

MS society, MS support groups, counselling services, and MS specialist nursesb

Poor Experiences:

Qual: 4/49 (8%)

Articles: 10, 19, 27, 37

Quant: 1/17 (6%)

Articles: 9Q

Needs and

experiences of the HCPs

Information about specialists with knowledge about MSa

Poor Experiences of General informational provision

Lack of information from general practitioners and eye specialistsb

Poor experiences of specific informational needs

Patients reported experiences of being given the wrong information around diagnosisa

Some patients identified that HCPs were not able to diagnosis or identify the experience of MS related symptomsa

Patients expressed that some HCPs did not know enough leaving patients with

unanswered questionsa

Inappropriate advice regarding treatment and regimes was identifieda

Information around the end of life care was identifieda

Good Experiences of general informational needs

General support for satisfaction with

interactions were reportedb

Good experiences of specific informational needs

Qualitative valued by patients included

efficient appointment, accurate diagnosis and identification of problemsa

Being responsive to questions and

acknowledging limits of science and current knowledgea

Arranging follow up meetingsa

Expectation:

Quant: 1/49 (2%)

Articles: 9Q

Poor Experience

Qual: 15/49 (31%)

Articles: 4, 7, 8, 11, 19, 20, 23, 27, 30, 31, 35, 37, 38, 46, 48

Good Experiences:

Qual: 8/49 (16%)

Articles: 3, 24, 28, 29, 37, 42, 44, 49

Quant: 7/17 (41%)

Articles: 6Q, 7Q, 8Q, 9Q, 10Q, 13Q, 15Q

Poor experiences of specific informational needs

Expectation: