Area of informational need | Wants and expectations (support from qualitative articles = a, support from quantitative articles = b, support from both = c) | Experiences of informational provision (support from qualitative articles = a, support from quantitative articles = b, support from both = c) | Support from Research |
When was the information needed
Timing of information given | Information before a diagnosis was received or early informationc |
| Expectation:
Qual: 9/49 (8%)
Articles: 3, 4, 12, 15, 19, 23, 36, 48, 49
Quant: 4/17 (24%)
Articles: 1Q, 3Q, 5Q, 13Q |
Needs and experiences considering the MS and symptoms | General informational provision
The meaning of diagnosisc
Information around the symptoms and how to identify that an attack was occurringc
What change in symptoms to expect, the prospects of getting worsec
Role of different HCPsb
Specific information provision
Importance of hereditary informationb
Physical functioning and problems including; walking and balance, bladder and bowel, fatigue, overheating, sexual problemsb
Information around psychological problems including stress and emotional changesb
Understand the medication they were takingc
Information on how to self-managea
Identification of action, treatments or rehabilitation that could be takenc
Current research being undertakenb | Poor Experiences of General informational provision
Patients identified not receiving adequate advice or information about what is happening from doctorsc
Patient left with unanswered questions due to; not understanding information at time or not remembering detailsa
More information about MS requiredb
Poor Experiences Specific informational provision
Bowel and bladderb
Painb
End of life carea | Expectation:
Qual: 9/49 (8%)
Articles: 3, 4, 12, 15, 19, 23, 36, 48, 49
Quant: 5/17 (29%)
Articles: 1Q, 3Q, 5Q, 12Q, 13Q
Poor Experiences
Qual: 22/49 (45%)
Articles: 2, 3, 4, 6, 9, 10, 11, 15, 17, 19, 20, 23, 24, 28, 30, 36, 37, 42, 45, 47, 48, 49
Quant: 4/17 (24%)
Articles: 3Q, 9Q, 10Q, 16Q |
Information giving related to service provision and needs | General information
If free services and agencies were availablea
what entitlements and financial support the patient had, further to this where to get money in times of troublea
what applications could be made was identified some quantitative studyb | Poor Experiences of General informational provision
Deficiency of information around services and benefit entitlementsa | Expectation:
Qual: 10/49 (20%)
Articles: 2, 5, 10, 11, 12, 13, 15, 24, 44, 48
Quant: 3/17 (18%)
Articles: 5Q, 11Q, 12Q |